17 November 2014
The UK Government has released a new framework for action on using data and technology ‘to transform outcomes for patients and citizens’.
The Personalised health and c are 2020 policy document from the Department of Health’s National Information Board (NIB) is intended to support health professionals, patients and citizens to ‘take better advantage of the digital opportunity’. The plan is to use lessons from industry and the wider economy to help the health and care system to use technological advances to meet the challenges of improving health and providing better and sustainable care, as well as widening access to health services and reducing inequalities.
Not only does much of the UK population regularly use (and increasingly expect to use) digital technologies in everyday life, but varied industries also employ it successfully; the report highlights aviation as having successfully implemented it despite compelling safety and security demands.
Proposals in the NIB framework include measures to:
Safeguarding data, securing public trust
The intention of maintaining public confidence has been taken very seriously indeed, with the Government also announcing the appointment of Dame Fiona Caldicott to the newly created post of National Data Guardian. Along with an independent Information Governance Oversight Panel, dame Fiona ‘will become the patients’ champion on security of personal medical information’. The role is ultimately to have direct powers enshrined in law, but for the time being the Information Commissioner’s Office and the Care Quality Commission will act against any organisations that fail to comply with her recommendations to create the ‘security of a much tougher and more transparent regime’ for patients.
Bridging the funding and quality gaps
The NIB's recommendations are in line with NHS England's recent Five Year Forward View report, which noted the importance of implementing technology and data sharing to address the looming NHS funding gap. Indeed, the new framework makes no bones about the need for investment in technology to yield both reduced demand and lower running costs for the NHS and social care services, ‘helping our NHS meet the efficiency, as well as quality, challenges it faces’.
It is similarly candid in the need for improvements in quality and outcomes, contrasting the success of clinical technological innovations in recent years with the failure to make use of technology and data to improve population and individual heath and the way health and social care services are delivered. It notes that to beleaguered health professionals the digital age has previously been merely ‘an intrusive additional burden in an already pressured existence’; taxpayers are missing out on efficiencies enabled by technology; and patients suffer from preventable ill-health and suboptimal care. Instead, the report is insistent that technology can be used to empower people to take charge of their own health.
Personalisation and partnerships
Personalisation of care and the impact of genomics are recurring issues in the framework, with the news that the Department of Health, NHS England, Genomics England and the Health & Social Care Information Centre will establish a working group with ‘other relevant scientific bodies’ to ensure that the NHS is capable of supporting genomics and molecular pathology to build on the 100,000 Genomes Project, which has been a key focus for the PHG Foundation.
The Department of Health will also work with industry representatives, Academic Health Science Networks and Centres and others to develop an industry strategy for partnering between the health and care system and consumer digital and data industries, including to support the discovery and development of new therapeutics and interventions.
The NIB will publish roadmaps in early 2015 to provide more detail on both the evidence base and the implementation plans for digital health technologies, as well as seeking input from stakeholders on the plans. Overall, the plans are highly ambitious, but also visionary: can the digital revolution really deliver the fundamental shift in health and social care (and population health behaviours) so badly needed? Whilst the previous track record for implementing IT - including the now defunct NHS Connecting for Health agency and related programmes - has been questionable, this is a real opportunity for the NHS.