Call for evidence on the current data protection legislative framework

1 November 2010

In this consultation response, we focus on a small number of questions which have particular relevance to our work and from which general principles can be drawn. We make some general points about:

  • The nature of genetic data
  • The inadequacy of specific consent as a prerequisite for epidemiological research
  • The nature and linkage od medical records between family members  in the context of clinical genetics

 

Read the full response here

 

Ministry of Justice