Year Consulting body Consultation title or topic
2017 Information Commissioner's Office Profiling and automated decision making under GDPR
House of Commons Science and Technology Committee HoC Science and Technology Committee inquiry on genomics and genome editing
APPG on Rare, Genetic and Undiagnosed Conditions Implementation of the UK Strategy for Rare Diseases in England
2016 House of Lords Select Committee The Long-Term Sustainability of the NHS: response from the PHG Foundation
Department of Health National Data Guardian for health and care's review of data security, consent and opt-outs
Nuffield Council on Bioethics Call for views and evidence on non-invasive prenatal testing
Nuffield Council on Bioethics Consultation response: Nuffield Council on Bioethics - Genome Editing Open Call for Evidence
Accelerated Access Review Consultation response: Accelerated Access Review - interim report
2015 The Science and Technology Committee Consultation response: The Big Data Dilemma Inquiry
NHS England Consultation response: Genetic laboratory service redesign
NHS England Consultation response: Investing in specialised services
Department for business Consultation response: Nurse review of research councils
2014 EuroGentest, European Commission Consultation response: Eurogentest: guidelines for diagnostic next generation sequencing
Department of Health Consultation response: Legislation to encourage medical innovation in healthcare
National Screening Committee Expanded bloodspot screening
Nuffield Council on Bioethics The linking and use of biological and health data
2013 Public Health England Public Health England: Knowledge Strategy
Presidential Commission for the Study of Bioethical Issues PHG Foundation's Response to the Request for Comments on Incidental Findings from the Presidential Commission for the Study of Bioethical Issues
European Commission Response from the PHG Foundation to the tabled amendments to draft EU regulations on in vitro diagnostic medical devices (IVDDR)
2012 Department of Health The benefits and harms of breast cancer screening: review response
Department of Health The future of the HFEA and HTA: consultation response
2011 Department of Health Innovation Review - Response from the PHG Foundation
Nuffield Council on Bioethics Emerging Biotechnologies - Response from the PHG Foundation
Department of Health Healthy Lives, Healthy People - PHG Foundation response
2010 Department of Health Liberating the NHS consultation - PHG Foundation response
Ministry of Justice Call for evidence on the current data protection legislative framework - Response from the PHG Foundation
European Commission Revision of Directive 98/79 of the European Parliament and of the Council of 27 October 1998 on In Vitro Diagnostic Medical Devices - Response from the PHG Foundation
National Institutes of Health (NIH) Response from the PHG Foundation to the request for information on the NIH plan to develop the Genetics Testing Registry (GTR)
2009 Human Genetics Commission A Common Framework of Principles for direct-to-consumer genetic testing services
Nuffield Council on Bioethics Medical profiling and online medicine: The ethics of 'personalised' healthcare in a consumer age
European Society of Human Genetics Genetic testing and common disorders
Department of Health Consultation on the framework for the registration of health and adult social care providers and on the draft Regulations
Secretary's Advisory Committee on Genetics, Health, and Society SACGHS Public Consultation Draft Report
Department of Health Consultation on regulations to implement the Human Fertilisation and Embryology Act 2008
2008 NHS Connecting for Health Consultation on Secondary Uses of Patient Information
General Medical Council Consultation on Confidentiality Guidance
NHS NHS Constitution
Ministry of Justice Response to the amendments to the draft charter for bereaved people who come into contact with a reformed coroner system, and on proposals for the Coroners and Death Certification Bill contained in the draft legislative programme
General Medical Council Consent in Research
European Commission Recast of the Medical Devices Consultation
Department of Health Good Practice Guide in Paternity Testing Services
Association of British Insurers Code of Practice for Genetic Tests
Human Tissue Authority Revised Codes of Practice to the Human Tissue Act
House of Lords Science and Technology Committee Cell-free fetal DNA for non-invasive prenatal diagnosis
House of Lords Science and Technology Committee Genomic Medicine
Ministry of Justice Data Sharing Review
2007 World Medical Association Review of the Declaration of Helsinki: Ethical principles for biomedical research involving human beings
Medicine and Healthcare Products Regulatory Agency Challenges and priorities for the next five years
Department of Health Guidance on nominating a consultee for research involving adults who lack capacity to consent
Discrimination Law Review A Framework for a Fairer Future: Proposals for a Single Equality Bill for Great Britain
2006 Dept. for Constitutional Affairs On the Draft Code of Practice to the Mental Capacity Act 2005
Dept. for Constitutional Affairs On Lasting Powers of Attorney (LPA) - forms and guidance (DCA CP 01/06)
Department of Health Genetics White Paper: three year review
National Patient Safety Agency On implementing the recommendations of the Report of the Ad Hoc Advisory Group on the Operation of NHS Research Ethics
2005 The House of Commons Science and Technology Select Committee 'Human Reproductive Technologies and the Law'
Human Fertilisation and Embryology Authority Choices and Boundaries
2004 Royal Society Pharmacogenetics
The Human Genetics Commission Choosing the Future: Genetics and Reproductive Decision Making
Dept. for Constitutional Affairs 'Burial Law and Policy in the 21st Century'
2003 Royal Society 'Best practice in communicating the results of new scientific research to the public'
2001 Retained Organs Commission 'Unclaimed and unidentified organs and tissue'