In the news

In a joint statement with the British Society for Human Genetics, released through the UK Forum on Genetics and Insurance, the Association of British Insurers has confirmed that the results of genetic tests taken as part of a research project, rather than in the context of a clinical diagnostic process, need not be declared in applications for insurance cover. The ABI points out that, in any case, the only clinical genetic test results that have to be declared in insurance applications are those approved by the Genetics and Insurance Committee. Currently GAIC has only approved genetic tests for Huntington's disease, and only a small number of additional tests are under consideration (see Genetic testing and insurance page for further information). The ABI also points out that any clinical genetic test taken after insurance has been purchased need not be declared, even if it has been approved by GAIC. The BSHG has welcomed the ABI's statement, which it says will remove a burden of anxiety from people asked to take part in research projects, and ensure that important genetic research can go ahead.