Our Work

Consultation responses

You can access all of our work below. Use the tabs to view our: Published reports, Academic papers and Consultation responses.

Click on the title of an item to go to the page for that piece of work, where you can read a description of the work,  download a free PDF or order a print copy where available.

The work listed here includes both PHG Foundation work and the key outputs from the ten years of the Public Health Genetics Unit (PHGU), the publicly-funded organisation that the PHG Foundation grew out of (for more information about our history see here).

For highlights of our recent work click here.


Click on consultation title to download the full text of the response

Year Consulting body Consultation title or topic
2009 Human Genetics Commission A Common Framework of Principles for direct-to-consumer genetic testing services
Nuffield Council on Bioethics Medical profiling and online medicine: The ethics of 'personalised' healthcare in a consumer age
European Society of Human Genetics Genetic testing and common disorders
Department of Health Consultation on the framework for the registration of health and adult social care providers and on the draft Regulations
Secretary's Advisory Committee on Genetics, Health, and Society SACGHS Public Consultation Draft Report
Department of Health Consultation on regulations to implement the Human Fertilisation and Embryology Act 2008
2008 NHS Connecting for Health Consultation on Secondary Uses of Patient Information
General Medical Council Consultation on Confidentiality Guidance
NHS NHS Constitution
Ministry of Justice Response to the amendments to the draft charter for bereaved people who come into contact with a reformed coroner system, and on proposals for the Coroners and Death Certification Bill contained in the draft legislative programme
General Medical Council Consent in Research
European Commission Recast of the Medical Devices Consultation
Department of Health Good Practice Guide in Paternity Testing Services
Association of British Insurers Code of Practice for Genetic Tests
Human Tissue Authority Revised Codes of Practice to the Human Tissue Act
House of Lords Science and Technology Committee Cell-free fetal DNA for non-invasive prenatal diagnosis
Evidence from the PHG Foundation and the Joint Committee on Medical Genetics in response to the House of Lords Science and Technology Committee consultation regarding the use of Cell-free Fetal DNA (and RNA) for Non-Invasive Prenatal Diagnosis.
House of Lords Science and Technology Committee Genomic Medicine
Ministry of Justice Data Sharing Review
2007 World Medical Association Review of the Declaration of Helsinki: Ethical principles for biomedical research involving human beings
Medicine and Healthcare Products Regulatory Agency Challenges and priorities for the next five years
Department of Health Guidance on nominating a consultee for research involving adults who lack capacity to consent
Discrimination Law Review A Framework for a Fairer Future: Proposals for a Single Equality Bill for Great Britain
2006 Department of Health Genetics White Paper: three year review
Dept. for Constitutional Affairs On the Draft Code of Practice to the Mental Capacity Act 2005
Dept. for Constitutional Affairs On Lasting Powers of Attorney (LPA) - forms and guidance (DCA CP 01/06)
National Patient Safety Agency On implementing the recommendations of the Report of the Ad Hoc Advisory Group on the Operation of NHS Research Ethics
2005 The House of Commons Science and Technology Select Committee 'Human Reproductive Technologies and the Law'
Human Fertilisation and Embryology Authority Choices and Boundaries
2004 Royal Society Pharmacogenetics
The Human Genetics Commission Choosing the Future: Genetics and Reproductive Decision Making
Dept. for Constitutional Affairs 'Burial Law and Policy in the 21st Century'
2003 Royal Society 'Best practice in communicating the results of new scientific research to the public'
2001 Retained Organs Commission 'Unclaimed and unidentified organs and tissue'