26 June 2017
PHG Foundation's Alison Hall, will be speaking on the UK perspective on data sharing at Curating the Clinical Genome conference in Washington this Thursday.
Commencing tomorrow, this three-day conference on the pertinent topic of genomic data sharing, will bring together initiatives to develop common standards, share best practices, integrate the latest research findings and drive patient benefit.
PHG Foundation’s Head of Humanities, Alison Hall will present a UK perspective on data sharing in the morning session Perspectives and regulations on data sharing. Alison, an expert in legal, regulatory and ethical issues, who is also the current chair of the British Society for Genetic Medicine (BSGM) Ethics and Policy Committee, will bring to the session the insights and evidence from the PHG Foundation’s work on genomic data sharing for patient benefit.
Earlier this week, PHG Foundation and the Association for Clinical Genomic Science (ACGS) published Variant classification and interpretation – workshop report, a summary of a recent meeting convened with the aim of achieving national consensus on the principles that should underpin the development of variant classification and interpretation guidelines for use within the UK clinical genomics community.