10 May 2006
Author: Brendan Gogarty
Beginning in January 2004 , this programme brought together a Steering Group of professionals from a wide sphere with a particular interest in learning disability.
The Steering Group included experts in laboratory testing, clinical management in the genetics department and in paediatric and adult learning disability settings, leaders from voluntary organisations, together with PHGU epidemiology, public health in paediatrics laboratory testing, and clinical genetics.
List of participants:
Learning disability Steering Group
A descriptive summary of the epidemiological and molecular characteristics of learning disability
Summary of the technology development aspects of the learning disability project
Parents as Partners report:
A report and guidelines on the investigation of children with developmental delay; by parents, for professionals
Parents' guide to the investigation of children with developmental delay
Investigative guidelines for professionals:
A guide to the investigation of children with developmental delay in East Anglia (guidelines)
A guide to the investigation of children with developmental delay in East Anglia (evidence)
Contact for this work: Dr Hilary Burton