Beginning in January 2004 , this programme brought together a Steering Group of professionals from a wide sphere with a particular interest in learning disability. The Steering Group included experts in laboratory testing, clinical management in the genetics department and in paediatric and adult learning disability settings, leaders from voluntary organisations, together with PHGU epidemiology, public health in paediatrics laboratory testing, and clinical genetics.

Documents

List of participants:
Learning disability Steering Group
Background paper:
A descriptive summary of the epidemiological and molecular characteristics of learning disability
Technology report:
Summary of the technology development aspects of the learning disability project
Parents as Partners report:
A report and guidelines on the investigation of children with developmental delay; by parents, for professionals
Information leaflet:
Parents' guide to the investigation of children with developmental delay
Investigative guidelines for professionals:
A guide to the investigation of children with developmental delay in East Anglia (guidelines)
Evidence document:
A guide to the investigation of children with developmental delay in East Anglia (evidence)


Contact for this work: Dr Hilary Burton