Reform of data protection legislation

15 May 2017

The PHG Foundation is working with government departments and other NGO’s to highlight the impact that the new General Data Protection Regulation (GDPR) is likely to have on health care, biomedical innovation and medical research.

PHG Foundation Head of Humanities, Alison Hall, is a member of  the National Health and Social Care GDPR Working Group convened by NHS England and the Health Research GDPR Working Group

During the legislative progress of the General Data Protection Regulation (Regulation (EU) 2016/679), the PHG Foundation worked with the Wellcome Trust and other healthcare charities and interested stakeholders to advocate for a proportionate and facilitative regulatory framework that acknowledged the importance of medical research and innovation in healthcare. Read more 

The General Data Protection Regulation (Regulation (EU) 2016/679) on the protection of natural persons with regard to the processing of personal data and on the free movement of such data (GDPR)) was published in April 2016 and will be directly enforceable on Member States.

Our work to date