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		<title>Articles from the PHG Foundation News by Dr Alison Stewart</title>
		<link>http://www.phgfoundation.org/newsletter</link>
		<description>Articles from the PHG Foundation Newsletter by Dr Alison Stewart</description>
		<copyright>PHG Foundation</copyright>
		
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			<title>Common gene variants linked to increased risk of sudden cardiac death</title>
			<link>http://www.phgfoundation.org/news/4548/</link>
			<pubDate>Thu, 09 Apr 2009 00:00:00 +0100</pubDate>
			<description><![CDATA[ Changes in the length of the QT interval, a feature of the electrocardiogram that reflects repolarisation of the heart muscle, are known to be associated with heart rhythm defects and risk of sudden cardiac death. Long QT and Short QT syndromes are rare, heritable conditions in which the QT interval ... ]]></description>
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			<title>International Cancer Genome Consortium launched</title>
			<link>http://www.phgfoundation.org/news/4207/</link>
			<pubDate>Fri, 16 May 2008 00:00:00 +0100</pubDate>
			<description><![CDATA[ A new international collaboration, the International Cancer Genome Consortium, has been launched with the aim of coordinating efforts to catalogue the genomic changes in about 50 different cancer types and subtypes (see press release). It is hoped that this information will lead to new approaches to ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/4207/</guid>
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			<title>Progress review of Genetics White Paper</title>
			<link>http://www.phgfoundation.org/news/4075/</link>
			<pubDate>Mon, 28 Apr 2008 00:00:00 +0100</pubDate>
			<description><![CDATA[ Our inheritance, our future, the 2003 White Paper on genetics, set out the UK Government's first explicit policy commitments in the field of human genetics. Significant investment was announced in a range of areas including clinical genetic testing, pharmacogenetics research, service developme ... ]]></description>
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			<title>PHG Foundation responds to call for evidence on genomic medicine from House of Lords Committee</title>
			<link>http://www.phgfoundation.org/news/4071/</link>
			<pubDate>Tue, 22 Apr 2008 00:00:00 +0100</pubDate>
			<description><![CDATA[ In 1995 the House of Commons Select Committee on Science and Technology published Human Genetics: the Science and its Consequences, a report which showed for the first that UK politicians were becoming aware of new developments in genetics and their potential impact on health care. Publication of th ... ]]></description>
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			<title>HGC advocates legal ban on 'genetic discrimination'</title>
			<link>http://www.phgfoundation.org/news/3772/</link>
			<pubDate>Fri, 28 Sep 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The UK's Human Genetics Commission, which advises the Government on scientific advances in genetics, and in particular on their ethical, legal and social implications, has published its response to the Discrimination Law Review's consultation on proposals for a Single Equality Bill for G ... ]]></description>
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			<title>Gene expression test for prostate cancer diagnosis</title>
			<link>http://www.phgfoundation.org/news/3762/</link>
			<pubDate>Wed, 26 Sep 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ BBC News Online has reported the launch of a gene expression test that could improve the accuracy of the diagnosis of prostate cancer. Currently, a blood test is available that detects raised levels of a protein called prostate serum antigen (PSA); men with a high PSA score may be offered a prostate ... ]]></description>
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			<title>Genomic profiling: the critical importance of genotype frequency</title>
			<link>http://www.phgfoundation.org/news/3740/</link>
			<pubDate>Thu, 20 Sep 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ It has been suggested that, in the future, it may be possible to use 'genomic profiling' - that is, the simultaneous testing of many different gene variants - for the prediction of common diseases such a coronary heart disease or Type 2 diabetes. Continuing their careful theo ... ]]></description>
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			<title>Childhood screening for familial hypercholesterolaemia proposed</title>
			<link>http://www.phgfoundation.org/news/3733/</link>
			<pubDate>Tue, 18 Sep 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ Familial hypercholesterolaemia is a highly penetrant, autosomal dominant condition that affects about 1 in 500 people. Affected individuals have very high blood cholesterol levels and are at greatly increased risk of coronary heart disease by the time they reach middle age. It is thought that at lea ... ]]></description>
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			<title>Theoretical analysis stresses importance of sample size in genome-wide association studies</title>
			<link>http://www.phgfoundation.org/news/3627/</link>
			<pubDate>Thu, 23 Aug 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ Recent months have seen publication of several research papers reporting striking success in the use of genome-wide association studies to find genetic variants (alleles) associated with common, complex diseases. These studies typically scan many thousands of single-nucleotide polymorphisms (SNPs) d ... ]]></description>
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			<title>New FDA guidance on pharmacogenetic and genetic tests</title>
			<link>http://www.phgfoundation.org/news/3619/</link>
			<pubDate>Sat, 18 Aug 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ Earlier in the summer, the US Food and Drug Administration (FDA) issued new guidance for pharmacogenetic and genetic tests for heritable markers. The guidance is intended for use by the pharmaceutical and biotech industries in preparing pre-market approval applications and pre-market notification su ... ]]></description>
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			<title>Lone Senator blocks US Genetic Nondiscrimination Act</title>
			<link>http://www.phgfoundation.org/news/3613/</link>
			<pubDate>Wed, 15 Aug 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ Nature magazine reports that a single US Senator, Republican Tom Coburn, has blocked the Genetic Information Nondscrimination Act that is currently before the US Congress [Wadman M (2007) Nature 448(7154):631]. The Act proposes that there should be a ban on use of genetic information in connection w ... ]]></description>
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			<title>Royal Society supports research on human-animal hybrid embryos</title>
			<link>http://www.phgfoundation.org/news/3563/</link>
			<pubDate>Thu, 02 Aug 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The Royal Society's response to the Human Fertilisation and Embryology Authority's (HFEA) consultation on the ethical and social implications of creating human-animal hybrids in research sets out strong support for a policy of allowing this research.    The Society believes that research ... ]]></description>
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			<title>Calls to save Commons Science Committee</title>
			<link>http://www.phgfoundation.org/news/3548/</link>
			<pubDate>Mon, 30 Jul 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ Amid rumours that the UK Government is planning to scrap the House of Commons Select Committee on Science and Technology and replace it with a committee that would be part of the newly created Department for Innovation, Universities and Skills, members of the current committee, and some commentators ... ]]></description>
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			<title>Potential harm from 'PGD tourism'</title>
			<link>http://www.phgfoundation.org/news/3513/</link>
			<pubDate>Fri, 13 Jul 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ According to a paper presented at the annual meeting of the European Society of Human Reproduction and Embryology earlier this month (see press release), an increasing number of couples are travelling abroad within Europe to seek preimplantation genetic diagnosis (PGD). The paper summarised the resu ... ]]></description>
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			<title>DeCODE launches gene test for stroke risk</title>
			<link>http://www.phgfoundation.org/news/3501/</link>
			<pubDate>Thu, 05 Jul 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The company deCODE Genetics is selling a genetic test for two gene variants that increase the risk of atrial fibrillation, itself a cause of cardiogenic stroke. The evidence for the association between the two variants and stroke risk will be published in a paper scheduled to appear in Nature magazi ... ]]></description>
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				<item>
			<title>'Telling Stories' resource for genetics education</title>
			<link>http://www.phgfoundation.org/news/3499/</link>
			<pubDate>Wed, 04 Jul 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The UK's NHS National Genetics Education and Development Centre has developed a resource of 'real life' stories of the experiences of patients and their families, carers and health professionals in dealing with the impact of genetic conditions on their lives or professional practic ... ]]></description>
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			<title>NIH Roadmap leads to genomics</title>
			<link>http://www.phgfoundation.org/news/3497/</link>
			<pubDate>Tue, 03 Jul 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ As part of its Roadmap strategy to tackle major opportunities and gaps in biomedical research, the US National Institutes of Health has published its latest list of priority research areas that cut across all 27 of its constituent institutes and centres. There is a clear focus on genomics, with majo ... ]]></description>
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			<title>Limitations of BRCA mutation prediction models for women with early onset breast cancer and no family history</title>
			<link>http://www.phgfoundation.org/news/3483/</link>
			<pubDate>Sat, 30 Jun 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ Women with breast cancer who carry a mutation in either the BRCA1 or the BRCA2 gene have a substantial risk of a developing a second primary breast tumour or ovarian cancer in the absence of prophylactic intervention such as mastectomy, oophorectomy or tamoxifen treatment. Risk prediction models to  ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/3483/</guid>
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				<item>
			<title>Gates Foundation funds new institute to monitor global public health</title>
			<link>http://www.phgfoundation.org/news/3457/</link>
			<pubDate>Wed, 27 Jun 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The Gates Foundation is to invest $105 million over 10 years to set up a new public health institute, the Health Metrics and Evaluation Institute (see press release). The University of Washington in Seattle, where the Institute will be based, is also contributing $20 million to the venture. The Inst ... ]]></description>
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			<title>Competences for new genetics roles in health services</title>
			<link>http://www.phgfoundation.org/news/3453/</link>
			<pubDate>Tue, 26 Jun 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ One of the UK Government's commitments in its 2003 White Paper on genetics was to fund a set of pilot service development projects for risk assessment and cancer prevention based on family history. The projects have been run jointly with Macmillan Cancer Care. A paper published recently in the ... ]]></description>
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			<title>New UK biomarker research initiative</title>
			<link>http://www.phgfoundation.org/news/3452/</link>
			<pubDate>Mon, 25 Jun 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The UK's Medical Research Council, together with the British Heart Foundation and pharmaceutical and biotechnology companies, are jointly sponsoring a pound;17 million research programme to evaluate novel genomic biomarkers for conditions such as cardiovascular disease, cancers, stroke and Pa ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/3452/</guid>
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			<title>Genomics bibliography for philosophers and social scientists</title>
			<link>http://www.phgfoundation.org/news/3450/</link>
			<pubDate>Thu, 21 Jun 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ Researchers at Egenis (the ESRC Centre for Genomics in Society) have developed an annotated bibliographic database that aims "to make the science [of genomics] and its implications more accessible to those with philosophical, historical and sociological interests in the various fundamental que ... ]]></description>
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			<title>American Heart Association statement on genetics and genomics</title>
			<link>http://www.phgfoundation.org/news/3437/</link>
			<pubDate>Wed, 20 Jun 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ As part of a review on the genetics of cardiovascular disease (CVD) published in the journal Circulation, the American Heart Association has made a list of recommendations "intended to help incorporate usable knowledge into current clinical and public health practice" [Arnett DK et al. ( ... ]]></description>
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			<title>Surprises from ENCODE</title>
			<link>http://www.phgfoundation.org/news/3434/</link>
			<pubDate>Mon, 18 Jun 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The first report from the ENCODE (Encyclopedia of DNA Elements) consortium suggests that we might need to make some quite fundamental adjustments to our thinking about how the human genome functions [The ENCODE Project Consortium (2007) Nature 447, 799-816 (abstract)]. The consortium used a range of ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/3434/</guid>
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			<title>Study aims to chart DNA variation across Britain</title>
			<link>http://www.phgfoundation.org/news/3433/</link>
			<pubDate>Fri, 15 Jun 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ A group of Oxford scientists, led by Professor Walter Bodmer, is seeking DNA samples from 3500 people living in different regions of Britain, in an attempt to chart patterns of DNA variation across the British Isles. It is hoped that the results of the People of the British Isles project will shed l ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/3433/</guid>
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			<title>Discrimination Law Review outlines proposals for a single Equality Bill for Great Britain</title>
			<link>http://www.phgfoundation.org/news/3432/</link>
			<pubDate>Thu, 14 Jun 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The UK Government has launched a consultation on proposals for a single Equality Bill for Great Britain (England, Scotland and Wales). The proposals have been developed as a result of the work of the Discrimination Law Review, which was set up to explore the idea of creating a single, modernised fra ... ]]></description>
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			<title>modENCODE project to study functional DNA elements in model organisms</title>
			<link>http://www.phgfoundation.org/news/3421/</link>
			<pubDate>Mon, 11 Jun 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The US National Human Genome Research Institute has allocated the first grants in a four-year project called modENCODE, which aims to identify all the functionally important elements in the genomes of the fruit fly Drosophila melanogaster and the roundworm Caenorhabditis elegans. modENCODE is part o ... ]]></description>
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			<title>Funding for Quebec CARTaGENE project</title>
			<link>http://www.phgfoundation.org/news/3417/</link>
			<pubDate>Fri, 08 Jun 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The Canadian Government and the Government of the province of Quebec have announced  funding of $28.5 million over three years for the CARTaGENE project, a biobanking initiative that will involve recruiting 20,000 Quebec citizens aged 40-60. Participants will provide DNA and other biological sa ... ]]></description>
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			<title>Genome-wide study identifies gene variants associated with six common diseases</title>
			<link>http://www.phgfoundation.org/news/3415/</link>
			<pubDate>Thu, 07 Jun 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ Striking results from another genome-wide association (GWA) study have been published in Nature [The Wellcome Trust Case Control Consortium (2007) Nature 447, 661-78 (abstract)]. A consortium of over 50 research groups funded by the Wellcome Trust has identified 24 highly significant associations be ... ]]></description>
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			<title>Cardiac specialists criticise lack of services for sudden cardiac death syndromes</title>
			<link>http://www.phgfoundation.org/news/3409/</link>
			<pubDate>Wed, 06 Jun 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ According to BBC News, cardiac specialists are calling on the government to honour commitments to improve services for individuals and families affected by sudden cardiac death syndromes [also known as SADS, for sudden adult (or arrhythmic) death syndromes]. These syndromes, which are often genetic, ... ]]></description>
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			<title>UK Biobank Ethics and Governance Council reports on its work</title>
			<link>http://www.phgfoundation.org/news/3371/</link>
			<pubDate>Thu, 31 May 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The independent Council that oversees the ethics and  governance arrangements for UK Biobank has published its annual review for  2006. The UK Biobank  Ethics and Governance Council's (EGC) report outlines the key principles of  Biobank's Ethics and Governance Framework and summarises th ... ]]></description>
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			<title>Rapid, high-throughput detection of Fragile X carriers claimed suitable for population screening</title>
			<link>http://www.phgfoundation.org/news/3358/</link>
			<pubDate>Fri, 18 May 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ Fragile X syndrome is an inherited form of learning disability caused by expansion of a tract of CGG repeats on the X chromosome that leads to methylation and decreased expression of the FMR1 gene. The condition is estimated to affect between 1/4000 and 1/8000 males.  Normal individuals have fe ... ]]></description>
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			<title>Study will gauge reactions to DNA testing for susceptibility to common disease</title>
			<link>http://www.phgfoundation.org/news/3357/</link>
			<pubDate>Wed, 16 May 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The US National Human Genome Research Institute (NHGRI) and National Cancer Institute are teaming with healthcare organisations in the state of Michiganto carry out a research study on how young adults react to DNA test information indicating their genetic risk of common diseases.     The Multiplex  ... ]]></description>
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			<title>More Type 2 diabetes susceptibility genes</title>
			<link>http://www.phgfoundation.org/news/3356/</link>
			<pubDate>Mon, 14 May 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The number of reasonably firm gene-disease associations for Type 2 diabetes is now at least 9, according to results from four large genome-wide association studies accepted for publication in the journals Science and Nature Genetics [Saxena R et al. Science advance online publication DOI: 10.1126/sc ... ]]></description>
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			<title>Controversial PGD licence for genetic condition that impairs eye movement</title>
			<link>http://www.phgfoundation.org/news/3319/</link>
			<pubDate>Fri, 11 May 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ According to the UK's Sunday Times and Daily Telegraph newspapers, The Bridge Centre in London has been granted a licence by the Human Fertilisation and Embryology Authority to use preimplantation genetic diagnosis (PGD) to test the embryos of a couple at risk of having a child with a genetic  ... ]]></description>
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			<title>Common gene variant substantially increases heart attack risk, but rush to develop a test is premature</title>
			<link>http://www.phgfoundation.org/news/3314/</link>
			<pubDate>Thu, 10 May 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ Two papers in press in Science magazine report results of genome-wide association studies which have revealed that a common DNA sequence variant on human chromosome 9 is significantly associated with risk of heart attack [(Helgadottir A et al. Science advance online publication DOI: 10.1126/science. ... ]]></description>
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			<title>EU Advanced Therapies regulation clears European Parliament</title>
			<link>http://www.phgfoundation.org/news/3313/</link>
			<pubDate>Thu, 10 May 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ Over the last two years, the European Commission (the executive body of the European Union) has been working to develop a regulation creating a centralised market-authorisation procedure for "advanced therapy medicinal products", including both gene therapy and cell therapies. A draft re ... ]]></description>
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			<title>US advisory group outlines policy issues raised by large population cohort studies</title>
			<link>http://www.phgfoundation.org/news/3306/</link>
			<pubDate>Tue, 08 May 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ During the last few years the US National Institutes of Health has been considering the pros and cons of initiating a large, longitudinal population study to investigate the influence of genetic and environmental factors on common complex diseases. Similar initiatives are already underway in some ot ... ]]></description>
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			<title>US advisory group seeks comments on pharmacogenomics report</title>
			<link>http://www.phgfoundation.org/news/3305/</link>
			<pubDate>Fri, 04 May 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The US Secretary's Advisory Committee on Genetics Health and Society (SACGHS), which advises the Secretary for Health and Human Services, is seeking comments on its draft report Realising the promise of pharmacogenomics: opportunities and challenges.     The aim of the report is "to prov ... ]]></description>
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			<title>EuroGentest draft recommendations on genetic counselling</title>
			<link>http://www.phgfoundation.org/news/3303/</link>
			<pubDate>Wed, 02 May 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ EuroGentest is a European network of excellence that aims to improve and harmonise standards for laboratory genetic testing services in Europe. The network's six major units of work cover quality management, information databases, public health, ethical and legal aspects, new technologies and  ... ]]></description>
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			<title>Study casts doubt on candidate genes for heart disease</title>
			<link>http://www.phgfoundation.org/news/3301/</link>
			<pubDate>Tue, 01 May 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The field of genetic epidemiology has been plagued by the difficulty of achieving independent replication of proposed associations between genetic variants and common, multifactorial diseases. A new study published in JAMA highlights this problem by reporting failure to replicate significant associa ... ]]></description>
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			<title>European human embryonic stem cell registry</title>
			<link>http://www.phgfoundation.org/news/3296/</link>
			<pubDate>Mon, 30 Apr 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The European Commission recently announced that it has allocated 1 million euros of 6th Research Framework Programme funding over 3 years to set up a European registry of human embryonic stem cell lines. The registry will be maintained jointly by the Centre for Regenerative Medicine in Barcelona and ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/3296/</guid>
		</item>
				<item>
			<title>New drug has potential to treat a range of genetic diseases</title>
			<link>http://www.phgfoundation.org/news/3289/</link>
			<pubDate>Fri, 27 Apr 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ Around 5-70% of cases of some genetic diseases are caused by mutations that introduce a premature 'stop' signal into the gene. When the cellular machinery that translates genetic information into proteins encounters a messenger RNA (mRNA) that has such a premature 'stoprsquo ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/3289/</guid>
		</item>
				<item>
			<title>Launch of UK National Stem Cell Network</title>
			<link>http://www.phgfoundation.org/news/3291/</link>
			<pubDate>Wed, 25 Apr 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ Fulfilling one of the recommendations in the 2005 report of the UK Stem Cell Initiative (known as the 'Pattison' report), a National Stem Cell Network has been set up in the UK to help coordinate national and regional initiatives to promote and support research on stem cells and their et ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/3291/</guid>
		</item>
				<item>
			<title>Inactivation of specific tumour genes may increase effectiveness of chemotherapy drugs</title>
			<link>http://www.phgfoundation.org/news/3268/</link>
			<pubDate>Mon, 23 Apr 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ Chemotherapy treatment for cancer is debilitating and unpleasant, and individuals vary widely in the responsiveness of their cancer to the drug. Boosting the drug-sensitivity of tumour cells might make it possible to give lower doses of a chemotherapy agent while still achieving an effective respons ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/3268/</guid>
		</item>
				<item>
			<title>US Senators urge regulation of &quot;home brew&quot; genetic tests</title>
			<link>http://www.phgfoundation.org/news/3267/</link>
			<pubDate>Fri, 20 Apr 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ Two US Senators have introduced a Bill into the US Congress that would, if it clears the many hurdles to become law, require companies offering clinical testing services to supply evidence of their test's analytical and clinical validity. Currently 'home brew' tests, where the comp ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/3267/</guid>
		</item>
				<item>
			<title>The Human Variome Project</title>
			<link>http://www.phgfoundation.org/news/3263/</link>
			<pubDate>Wed, 18 Apr 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ Research on variation in the human genome and its clinical consequences has spawned a bewildering number and variety of databases, including the Human Gene Mutation Database (HGMD), dbSNP and TSC (databases of single nucleotide polymorphisms), the HapMap database, and OMIM (On-line Mendelian Inherit ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/3263/</guid>
		</item>
				<item>
			<title>New light on autism genomics</title>
			<link>http://www.phgfoundation.org/news/3261/</link>
			<pubDate>Mon, 16 Apr 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ Twin studies and other evidence suggest a significant genetic contribution to susceptibility to autism spectrum disorders (ASDs), a range of debilitating neurodevelopmental disorders that together affect about 6 in every 1,000 children. Whole genome linkage scans have revealed some chromosomal regio ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/3261/</guid>
		</item>
				<item>
			<title>Strong emphasis on genomics in MRC translational medicine centres</title>
			<link>http://www.phgfoundation.org/news/3232/</link>
			<pubDate>Mon, 02 Apr 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The UK's Medical Research Council recently announced an investment of pound;15 million to establish six new centres of translational medicine, which will aim to accelerate the translation of scientific advances into new drugs, diagnostics, therapies and preventive strategies to improve human  ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/3232/</guid>
		</item>
				<item>
			<title>Cardiovascular health is best in offspring of the oldest parents</title>
			<link>http://www.phgfoundation.org/news/3229/</link>
			<pubDate>Fri, 30 Mar 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The Framingham Heart Study, which began in 1948, is a well-known longitudinal study of risk factors for cardiovascular and other chronic diseases in a community based sample of people originally residing in Framingham Massachusetts in the United States. A new study on 1697 offspring enrolled in the  ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/3229/</guid>
		</item>
				<item>
			<title>Biobank large-scale recruiting underway in Manchester</title>
			<link>http://www.phgfoundation.org/news/3203/</link>
			<pubDate>Mon, 26 Mar 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ Following a successful pilot study, UK Biobank has begun to roll out its recruitment programme, beginning the greater Manchester area (see press release). Over the next year, tens of thousands of people aged 40-69 will receive a letter inviting them to enrol in Biobank and to attend an initial asses ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/3203/</guid>
		</item>
				<item>
			<title>US healthcare provider plans large genetics research programme</title>
			<link>http://www.phgfoundation.org/news/3201/</link>
			<pubDate>Thu, 22 Mar 2007 00:00:00 +0000</pubDate>
			<description><![CDATA[ California-based healthcare provider Kaiser Permanente hopes to enrol 500,000 of its 2 million adult members in northern California in an ambitious research programme (the Research Program on Genes, Environment and Health) that aims "to identify genetic and environmental factors that affect hu ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/3201/</guid>
		</item>
				<item>
			<title>Antenatal diagnosis of Down syndrome: new evidence and current practice</title>
			<link>http://www.phgfoundation.org/news/3190/</link>
			<pubDate>Tue, 20 Mar 2007 00:00:00 +0000</pubDate>
			<description><![CDATA[ Women who test positive in antenatal Down syndrome screening programmes and elect to undergo amniocentesis and diagnostic testing can experience great anxiety while they await the results of diagnostic karyotyping, which takes 2-4 weeks. A study for the UK's Health Technology Assessment progra ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/3190/</guid>
		</item>
				<item>
			<title>Primary Care Genetics Society launched</title>
			<link>http://www.phgfoundation.org/news/3185/</link>
			<pubDate>Mon, 12 Mar 2007 00:00:00 +0000</pubDate>
			<description><![CDATA[ A new society devoted to the implications of genetics for primary care practice has been launched in the UK. The Primary Care Genetics Society (PCGS) aims "to support and facilitate the educational needs of primary care practitioners to help translate the continuing advances in clinical geneti ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/3185/</guid>
		</item>
				<item>
			<title>Launch of international network for genomics and population health: GraPH-Int</title>
			<link>http://www.phgfoundation.org/news/2520/</link>
			<pubDate>Mon, 12 Jun 2006 00:00:00 +0100</pubDate>
			<description><![CDATA[ A new international network has been launched that aims to bring together all those interested in the translation of advances in genomic science and technologies into benefits for population health. The network, officially launched on 6 June at the 4th International Conference on DNA Sampling: Genom ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/2520/</guid>
		</item>
				<item>
			<title>Genetics and reproductive decision-making: assessing the public’s views</title>
			<link>http://www.phgfoundation.org/news/1873/</link>
			<pubDate>Thu, 04 Aug 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[    The Human Genetics Commission has reported the results of a public consultation     on the use of genetics in reproductive decision-making (http://www.hgc.gov.uk/Client/news_item.asp?Newsid=40).     The consultation ran for six months during 2004. Analysis of the 196 responses     revealed a broa ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1873/</guid>
		</item>
				<item>
			<title>Community genetic screening for hereditary haemochromatosis</title>
			<link>http://www.phgfoundation.org/news/1732/</link>
			<pubDate>Thu, 30 Jun 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[  HFE-associated hereditary haemochromatosis (HFE-HHC) is a disorder that       causes inappropriately high levels of iron absorption and tissue storage.       Almost all individuals of Northern European origin with clinical haemochromatosis       are homozygotes or compound heterozygotes for mutatio ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1732/</guid>
		</item>
				<item>
			<title>Genetic thrombophilia and pregnancy complications</title>
			<link>http://www.phgfoundation.org/news/646/</link>
			<pubDate>Thu, 05 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ A case-control study of Jewish women in Israel suggests that women experiencing pregnancy complications such as preeclampsia and stillbirth are significantly more likely to have thrombophilic mutations than are women with normal pregnancies. Of 110 women with pregnancy complications but without a hi ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/646/</guid>
		</item>
				<item>
			<title>European Parliament adopts human tissue directive</title>
			<link>http://www.phgfoundation.org/news/1221/</link>
			<pubDate>Mon, 16 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ It seems that the European Directive “setting standards of quality and safety for the donation, procurement, testing, processing, storage, distribution and preservation of human tissues and cells” is nearing the end of its tortured progress through the EU’s decision-making process. As we have report ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1221/</guid>
		</item>
				<item>
			<title>Strengthening and rationalising molecular genetic testing in the UK</title>
			<link>http://www.phgfoundation.org/news/1207/</link>
			<pubDate>Mon, 16 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ As part of its brief “to provide high quality, equitable laboratory services for patients and their families who require genetic advice, diagnosis and management”, the UK Genetic Testing Network has begun the task of evaluating molecular genetic tests by the criteria of their analytical and clinical ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1207/</guid>
		</item>
				<item>
			<title>UK Genetic Testing Network publishes DNA test directory</title>
			<link>http://www.phgfoundation.org/news/1227/</link>
			<pubDate>Mon, 16 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ Recently the Steering Group of the UK Genetic Testing Network, set up to rationalise and coordinate DNA testing services in the National Health Service with the principal aim of achieving geographical equity for patients, published a directory of tests offered by laboratories participating in the ne ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1227/</guid>
		</item>
				<item>
			<title>Sudden unexplained death: implications for families</title>
			<link>http://www.phgfoundation.org/news/1217/</link>
			<pubDate>Mon, 16 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ A new study suggests that, in at least 20% of families affected by the sudden unexplained death of a young family member, a genetic heart condition may be the cause. Behr et al used coroners’ records to identify cases of sudden unexplained death in children and young adults and contacted first-degre ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1217/</guid>
		</item>
				<item>
			<title>NICE guidance recommends universal antenatal Down’s screening</title>
			<link>http://www.phgfoundation.org/news/1212/</link>
			<pubDate>Mon, 16 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ The National Institute for Clinical Excellence, which makes recommendations to the National Health Service on current “best practice” in medicine, has recently published guidance on routine antenatal care for healthy pregnant women. The report recommends that a range of screening tests should be off ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1212/</guid>
		</item>
				<item>
			<title>US Senate passes bill outlawing “genetic discrimination”</title>
			<link>http://www.phgfoundation.org/news/1194/</link>
			<pubDate>Mon, 16 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ After seven years’ negotiation, the United States Senate has unanimously passed The Genetic Information Nondiscrimination Act 2003. This Act, which must also be passed by the House of Representatives before it becomes law, prohibits the use of genetic information by insurers or employers. “Genetic i ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1194/</guid>
		</item>
				<item>
			<title>United Nations deadlocked on cloning ban</title>
			<link>http://www.phgfoundation.org/news/1196/</link>
			<pubDate>Mon, 16 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ A working group of the General Assembly of the United Nations appears to have reached an impasse in attempts to reach international agreement on a treaty to ban reproductive cloning (see report from Reuters new agency). The problem is that a group of nations led by Costa Rica, and including the Unit ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1196/</guid>
		</item>
				<item>
			<title>Genetics education for health professionals: developing a national strategy</title>
			<link>http://www.phgfoundation.org/news/1178/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ In the coming years, developments in genetic science will have an increasing impact on health care and health services. Many surveys have come to the conclusion that health professionals are not well-prepared for the changes that will come as genetics spreads from specialist centres to affect wider  ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1178/</guid>
		</item>
				<item>
			<title>Department of Health invites bids for NHS Genetics and Education Development Centre</title>
			<link>http://www.phgfoundation.org/news/1181/</link>
			<pubDate>Mon, 16 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ In its White Paper, Our Inheritance, Our Future, the UK Government announced its intention to set up a genetics education centre that would act as an “enabler” to facilitate the incorporation of genetics into the training of a wide range of healthcare professionals. The Department of Health has now  ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1181/</guid>
		</item>
				<item>
			<title>UK Biobank publishes ethics and governance plans</title>
			<link>http://www.phgfoundation.org/news/1182/</link>
			<pubDate>Mon, 16 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ The funders of UK Biobank have released for consultation their plans for ethical oversight and governance of the project. Biobank aims to obtain genetic profiles, medical and lifestyle information from 500,000 middle-aged UK volunteers and to follow their health over the next 15-20 years, in order t ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1182/</guid>
		</item>
				<item>
			<title>Reporting health risks responsibly</title>
			<link>http://www.phgfoundation.org/news/1183/</link>
			<pubDate>Mon, 16 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ A new report from the King’s Fund describes the results of a study by BBC reporter Roger Harrobin on the way in which health risks are reported by the news media. Predictably, Harrobin found that scientists and public health experts are critical of news coverage of health issues, and indeed when the ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1183/</guid>
		</item>
				<item>
			<title>Population genomics projects get together</title>
			<link>http://www.phgfoundation.org/news/1184/</link>
			<pubDate>Mon, 16 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ Plans have been announced for four population genomics programmes – UK BioBank, Quebec’s CARTaGENE, the Estonian national gene bank project, and the GenomEUtwin project organised from Finland – to collaborate in an international consortium that has been dubbed Public Population Program in Genomics,  ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1184/</guid>
		</item>
				<item>
			<title>Schools events to celebrate &amp;quot;year of the gene&amp;quot;</title>
			<link>http://www.phgfoundation.org/news/1185/</link>
			<pubDate>Mon, 16 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ During October, a series of regional one-day events for one thousand 14-16-year-old UK school children will explore the theme of “Genetic futures”. The initiative, organised by the Medical Research Council, the Biotechnology and Biological Sciences Research Council, the Royal Society, the Department ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1185/</guid>
		</item>
				<item>
			<title>New assessment of screening for fragile X syndrome</title>
			<link>http://www.phgfoundation.org/news/1189/</link>
			<pubDate>Mon, 16 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ A new report published by the Health Technology Assessment (HTA) programme re-assesses options for screening for Fragile X syndrome, an inherited form of learning disability that affects about 1 in 4000 males and 1 in 8000 females [Song, FJ et al (2003) Health Technol Assess Vol 7, no. 16]. The dise ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1189/</guid>
		</item>
				<item>
			<title>Human Genetics Commission to investigate regulation of paternity testing</title>
			<link>http://www.phgfoundation.org/news/1186/</link>
			<pubDate>Mon, 16 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ The UK#039;s Human Genetics Commission, the main advisory group on genetics to the Government, has announced that it will begin to look into the regulation of paternity testing in the UK. Earlier this year, when it published its report Genes Direct on the provision of genetic testing services direc ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1186/</guid>
		</item>
				<item>
			<title>Genetic basis of kidney disease</title>
			<link>http://www.phgfoundation.org/news/1176/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ Nephronophthisis (NPHP) is a form of cystic kidney disease and the most common inherited cause of chronic renal failure in children. Four genetically and clinically distinct forms of this autosomal recessive disorder have been identified (NPHP1 - 4); the associated genetic loci have been mapped and  ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1176/</guid>
		</item>
				<item>
			<title>EU ethics group advises against use of genetic testing in the workplace</title>
			<link>http://www.phgfoundation.org/news/1173/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ The European Group on Ethics in Science and New Technologies (EGE), which advises the European Commission, has published an Opinion on Ethical aspects of genetic testing in the workplace. The group#039;s report considers three aspects of the use of genetic tests in this context: testing to predict  ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1173/</guid>
		</item>
				<item>
			<title>Prediction of therapeutic response in breast cancer patients - genetic tumour profiling</title>
			<link>http://www.phgfoundation.org/news/1177/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ Chemotherapy following surgery for breast cancer is a key factor in reducing death rates, but as yet there is no way to predict how patients will respond. A recent paper [Chang, J.C. et al. (2003) Lancet 362, 362-369 (Abstract)] reports the use of microarray technology to analyse gene expression in  ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1177/</guid>
		</item>
				<item>
			<title>Consultation on Code of Practice for UK Stem Cell Bank</title>
			<link>http://www.phgfoundation.org/news/1172/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ A UK Stem Cell Bank, funded by the Medical Research Council and the Biotechnology and Biological Sciences Research Council, is being set up at the National Institute of Biological Standards and Control. The aim of the Bank is to provide “ethically sourced, quality controlled adult, fetal and embryon ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1172/</guid>
		</item>
				<item>
			<title>New report urges Department of Health to take an active role in policy for intellectual property rights and genetics</title>
			<link>http://www.phgfoundation.org/news/1175/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ A new report on intellectual property rights and genetics recommends that the Department of Health (DH) should recognise its pivotal position as both a provider and a recipient of intellectual property, and should adopt an active approach both to policy development in this area and to routine manage ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1175/</guid>
		</item>
				<item>
			<title>European Commission proposes rules for EU funding of embryonic stem cell research</title>
			<link>http://www.phgfoundation.org/news/1168/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ Research on embryonic stem cells has always been controversial in the EU, with some countries implacably opposed to all such research while others, including the UK, would like to permit research as long as appropriate regulation is in place. EU countries cannot simply &quot;agree to differ&quot; on this matt ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1168/</guid>
		</item>
				<item>
			<title>First UK human embryonic stem cells</title>
			<link>http://www.phgfoundation.org/news/1174/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ A group of researchers at King#039;s College and Guy#039;s Hospital in London has successfully obtained a cell line of human embryonic stem cells, using stem cells extracted from a surplus IVF embryo that would otherwise have been destroyed. This is the first human embryonic stem cell line produce ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1174/</guid>
		</item>
				<item>
			<title>UNESCO moves towards declaration on human genetic data</title>
			<link>http://www.phgfoundation.org/news/1169/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ Over the last few years, the International Bioethics Committee of the United Nations Educational, Scientific and Cultural Organisation (UNESCO) has been deliberating on the safeguards needed to prevent misuse of human genetic information. In April it produced a “provisional preliminary draft” of an  ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1169/</guid>
		</item>
				<item>
			<title>Pharmacogenetics: what information do we need?</title>
			<link>http://www.phgfoundation.org/news/1170/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ During the 1990s, as the pace of the Human Genome Project accelerated, there were many predictions about how the knowledge stemming from this endeavour would revolutionise medicine. Among these was the promise that pharmacogenetics - the tailoring of drug medication to the individual patient on the  ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1170/</guid>
		</item>
				<item>
			<title>Council of Europe draft Protocol on biomedical research</title>
			<link>http://www.phgfoundation.org/news/1171/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ The Steering Committee on Bioethics of the Council of Europe has published a draft Additional Protocol to its Convention on Human Rights and Biomedicine. The additional Protocol concerns the measures that should be taken to protect people taking part in biomedical research projects. The Council of E ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1171/</guid>
		</item>
				<item>
			<title>Government responds to Human Genetics Commission's report on genetic information</title>
			<link>http://www.phgfoundation.org/news/1159/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ Simultaneously with the release of its White Paper detailing strategic investment in genetics in the NHS, the UK Government has responded to a report on genetic information by its main advisory group on genetics, the Human Genetics Commission. The HGC report, Inside Information, published in May 200 ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1159/</guid>
		</item>
				<item>
			<title>UK Government publishes White Paper on genetics in the NHS</title>
			<link>http://www.phgfoundation.org/news/1160/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ On 24 June the long-awaited White Paper on genetics was unveiled in Parliament by the new Health Secretary John Reid. The Paper promises a raft of new measures, supported by £50 million of investment over 3 years, to strengthen existing genetic services and to plan for the time when genetics and gen ... ]]></description>
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			<title>Europe's Council of Ministers approves Commission's amendments to draft Directive on human cells and tissues for therapeutic use</title>
			<link>http://www.phgfoundation.org/news/1161/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ Earlier this month, the Council of Health Ministers of the member countries of the European Union approved the latest version of a draft Directive &quot;setting standards of quality and safety for the donation, procurement, testing, processing, storage and distribution of human tissues and cells&quot;. The te ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1161/</guid>
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			<title>Finding the genes that influence blood pressure</title>
			<link>http://www.phgfoundation.org/news/1167/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ It has been estimated that about a third of the variation in blood pressure between individuals is heritable, and several large studies have been mounted in attempts to identify the genes underlying susceptibility to this trait. Success has been conspicuously lacking so far, with a very large US stu ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1167/</guid>
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			<title>Baby selected to be a tissue match for sibling is born in the UK</title>
			<link>http://www.phgfoundation.org/news/1162/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ A British couple who used the services of a US clinic to select an embryo that would be tissue match for their four-year-old son, who suffers from a rare form of anaemia, have announced the birth of a son (see report in BBC News On-line). The couple, Michelle and Jayson Whittaker, hope that cord blo ... ]]></description>
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			<title>Australian inquiry on genetic information publishes final report</title>
			<link>http://www.phgfoundation.org/news/1163/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ The Australian Law Reform Commission and the Australian Health Ethics Committee recently published a comprehensive report on the protection of human genetic information in Australia. The culmination of a two-year inquiry, the 1200-page report, entitled &quot;Essentially Yours&quot;, covers a wide range of con ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1163/</guid>
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			<title>Roslin Institute granted licence for human embryonic stem cell research</title>
			<link>http://www.phgfoundation.org/news/1164/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ Scientists at the Roslin Institute, home of the world#039;s first cloned mammal, Dolly the sheep, have been granted a licence by the Human Fertilisation and Embryology Authority to carry out research into improving ways of obtaining and culturing stem cells from human embryos (see HFEA press releas ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1164/</guid>
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			<title>Government defends Medical Research Council</title>
			<link>http://www.phgfoundation.org/news/1165/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ The Government has firmly rebutted a highly critical report on the conduct of the Medical Research Council that was published earlier this year by the House of Commons Science and Technology Committee (see item in March newsletter). The tone of the Government response is set from the first page, whi ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1165/</guid>
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			<title>US expected to ban use of genetic tests by insurers and employers</title>
			<link>http://www.phgfoundation.org/news/1166/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ The US Senate Committee on Health, Education Labor and Pensions has approved a bill that would prohibit insurers from using genetic test information in deciding whether to offer insurance coverage to an applicant, or in setting premiums (see news item in Washington Post). Employers would not be allo ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1166/</guid>
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			<title>Appeal Court judgment in the Hashmi case</title>
			<link>http://www.phgfoundation.org/news/1153/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ In April 2003, three Appeal Court judges announced that they had decided to uphold an appeal by the Human Fertilisation and Embryology Authority (HFEA) against a High Court decision which held that the HFEA did not have the legal authority to allow Raj and Shahana Hashmi to use preimplantation genet ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1153/</guid>
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			<title>Website for Centre for Medical Genetics and Policy</title>
			<link>http://www.phgfoundation.org/news/1155/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ A website has just been launched for The University of Cambridge Centre for Medical Genetics and Policy (CMGP). The CMGP is a “virtual” centre that aims to bring together those within the University of Cambridge who are interested in the clinical, ethical and social aspects of medical genetics, to p ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1155/</guid>
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			<title>Biobank hub and spokes announced – as controversy continues</title>
			<link>http://www.phgfoundation.org/news/1154/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ The funders of the UK Biobank project announced recently that the University of Manchester had been chosen as the location for the administrative “hub” of the project, with overall responsibility for “delivering the project including data management and quality assurance, computing and financial man ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1154/</guid>
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			<title>Down syndrome screening policy review and consultation</title>
			<link>http://www.phgfoundation.org/news/1156/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ The National Screening Committee is reviewing its policy for the national Down syndrome antenatal screening programme that is being introduced in the UK. At its meeting on 4 July 2003, the NSC will consider a paper on this issue, prepared by Muir Gray (NSC Programme Director) and David Worthington ( ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1156/</guid>
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			<title>Department of Health issues interim guidance on use of human tissues and organs</title>
			<link>http://www.phgfoundation.org/news/1158/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ It is widely recognised that current law governing the retention and use of human organs and tissue, both after death and from living patients, is inadequate in the light of changing public expectations in the wake of the Bristol and Alder Hey inquiries, a more patient-centred approach to NHS policy ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1158/</guid>
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			<title>Long-term, low dose warfarin for preventing recurrence of thromboembolism – no added value for genetic testing</title>
			<link>http://www.phgfoundation.org/news/1152/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ The anti-coagulant drug warfarin is well known as a treatment for venous thromboembolism. A recent paper reports the results of a study designed to determine whether treatment with lower doses of warfarin over an extended period could successfully prevent thromboembolism in patients who had already  ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1152/</guid>
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			<title>Balancing public benefits from scientific research against intellectual property rights: Royal Society reports</title>
			<link>http://www.phgfoundation.org/news/1141/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ In its report “Keeping science open: the effects of intellectual property policy on the conduct of science”, the Royal Society suggests some significant changes to the current regime for protecting intellectual property rights where they are applied to aspects of scientific research and knowledge di ... ]]></description>
            <guid isPermaLink="true">http://www.phgfoundation.org/news/1141/</guid>
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			<title>Human genome 99% complete, so where do we go from here? – a view from the NHGRI</title>
			<link>http://www.phgfoundation.org/news/1142/</link>
			<pubDate>Fri, 13 May 2005 00:00:00 +0100</pubDate>
			<description><![CDATA[ The International Human Genome Sequencing Consortium has announced that the sequencing phase of the project is essentially over: the “reference” human genome sequence has been established to an accuracy of 99.9% and covers about 99% of the gene-containing regions of the genome [see press releases fr ... ]]></description>
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