<?xml version="1.0" encoding="iso-8859-1"?>
	<!-- 
		XML Comment inserted to enable XSL in Firefox 2.0 
		XML Comment inserted to enable XSL in Firefox 2.0 
		XML Comment inserted to enable XSL in Firefox 2.0 
		XML Comment inserted to enable XSL in Firefox 2.0 
		XML Comment inserted to enable XSL in Firefox 2.0 
		XML Comment inserted to enable XSL in Firefox 2.0 
		XML Comment inserted to enable XSL in Firefox 2.0 
		XML Comment inserted to enable XSL in Firefox 2.0 
		XML Comment inserted to enable XSL in Firefox 2.0 
		XML Comment inserted to enable XSL in Firefox 2.0 
	-->
	<?xml-stylesheet type="text/xsl" href="http://www.phgfoundation.org/public/templates/foundation_corp/xsl/newsletter.xsl"?>
	<rss version="2.0">
		<channel>
		<title>Articles from the PHG Foundation Newsletter</title>
		<link>http://www.phgfoundation.org/newsletter</link>
		<description>Articles from the PHG Foundation Newsletter</description>
		<copyright>PHG Foundation</copyright>
		<list_type>news</list_type>
		<customJS>http://www.phgfoundation.org/rss/newsletter.xml?format=js</customJS>
		
				<item>
			<title>International approaches to rare diseases</title>
			<link>http://www.phgfoundation.org/news/month/09/2011/#story_9991</link>
			<pubDate>Mon, 19 Sep 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ A new report from the European Union Committee of Experts on Rare Diseases&amp;nbsp;(EUCERD), which sets out an overview of rare disease activities and policies across Europe, notes that the only EU member states with an established national strategy are France, Portugal, Greece, Bulgaria, Spain and the ... ]]></description>
		</item>
				<item>
			<title>New European science policy body to represent researchers</title>
			<link>http://www.phgfoundation.org/news/month/09/2011/#story_9813</link>
			<pubDate>Thu, 08 Sep 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ A new organisation to be launched next month aims to become the single voice for science policy in Europe.&amp;nbsp;ScienceEurope, to be launched on 21st October, will be based in Brussels and combines two existing groups, the European Science Foundation (ESF) based in France (see previous news) and the ... ]]></description>
		</item>
				<item>
			<title>Canadian campaign promotes science for the public good</title>
			<link>http://www.phgfoundation.org/news/month/11/2010/#story_6379</link>
			<pubDate>Fri, 12 Nov 2010 00:00:00 +0000</pubDate>
			<description><![CDATA[ Measures to explain the value and impact of publicly-funded science to the ultimate beneficiaries are an excellent idea, and ultimately could have a positive impact on understanding and support for evidence-based policy decisions &amp;ndash; though policy development is of course a highly complex proces ... ]]></description>
		</item>
				<item>
			<title>UK science at risk from immigration and funding curbs</title>
			<link>http://www.phgfoundation.org/news/month/10/2010/#story_5986</link>
			<pubDate>Tue, 19 Oct 2010 00:00:00 +0100</pubDate>
			<description><![CDATA[ The UK Science is Vital campaign (see previous news) has held a mass protest march in London to demonstrate against proposed funding cuts in science and engineering.&amp;nbsp; ]]></description>
		</item>
				<item>
			<title>UK charity becomes Genetic Alliance UK</title>
			<link>http://www.phgfoundation.org/news/month/06/2010/#story_5516</link>
			<pubDate>Mon, 07 Jun 2010 00:00:00 +0100</pubDate>
			<description><![CDATA[ The UK charity the Genetic Interest Group has become the Genetic Alliance UK. First established in 1989, the Genetic Alliance UK works to improve the lives of people affected by genetic conditions, by promoting awareness and understanding of these disorders with a view to driving the provision of hi ... ]]></description>
		</item>
				<item>
			<title>Landmark ruling in medical libel case</title>
			<link>http://www.phgfoundation.org/news/month/04/2010/#story_5337</link>
			<pubDate>Tue, 06 Apr 2010 00:00:00 +0100</pubDate>
			<description><![CDATA[ The UK science writer Simon Singh, whose dispute with the British Chiropractic Association (BCA) highlighted the absurdity of English libel laws when used to defend scientific criticism (see previous news) has won a victory in the Royal Courts of Justice in London. The Court of Appeal ruled that his ... ]]></description>
		</item>
				<item>
			<title>Canadian charter seeks support for stem cell medicine</title>
			<link>http://www.phgfoundation.org/news/month/09/2009/#story_4848</link>
			<pubDate>Thu, 24 Sep 2009 00:00:00 +0100</pubDate>
			<description><![CDATA[ 
The Canadian Stem Cell Foundation, an independent non-profit organisation dedicated to promoting the role of stem cell science in health, has launched a Stem Cell Charter. The purpose of the Charter (slogan: a stem cell can renew the world) is to attract signatories to affirm their support of resea ... ]]></description>
		</item>
				<item>
			<title>Muscular dystrophy in the UK: progress and problems</title>
			<link>http://www.phgfoundation.org/news/month/08/2009/#story_4789</link>
			<pubDate>Mon, 31 Aug 2009 00:00:00 +0100</pubDate>
			<description><![CDATA[ 

  A UK trial of a form of gene therapy for Duchenne muscular dystrophy or DMD (see previous news) has reported promising results. The therapeutic AVI-4658 is an antisense oligonucleotide molecule, administered via intra-muscular injection, which binds to exon 51 of the dystrophin gene and allows p ... ]]></description>
		</item>
				<item>
			<title>Patient perspectives on rare diseases</title>
			<link>http://www.phgfoundation.org/news/month/03/2009/#story_4536</link>
			<pubDate>Tue, 24 Mar 2009 00:00:00 +0000</pubDate>
			<description><![CDATA[ 

The European Organisation for Rare Diseases, EURORDIS, is a patient-driven alliance of patient organisations and individuals active in the field of rare diseases, many of which are genetic disorders. The organisation has been conducting a series of surveys as part of the Eurordis Survey Programme, ... ]]></description>
		</item>
				<item>
			<title>Data sharing: privacy concerns and public attitudes</title>
			<link>http://www.phgfoundation.org/news/month/03/2009/#story_4529</link>
			<pubDate>Mon, 16 Mar 2009 00:00:00 +0000</pubDate>
			<description><![CDATA[ How extensively should governments be able to share personal data without consent for the public good? This question has vexed many of those involved in medical research who have sought more effective means of carrying out large scale research studies without the need to take consent from every pati ... ]]></description>
		</item>
				<item>
			<title>Failed attempt to block UK hybrid embryo licences</title>
			<link>http://www.phgfoundation.org/news/month/12/2008/#story_4423</link>
			<pubDate>Thu, 11 Dec 2008 00:00:00 +0000</pubDate>
			<description><![CDATA[ UK campaign groups the Christian Legal Centre (CLC) and Comment on Reproductive Ethics (CORE) have lost their bid against the Human Fertilisation and Embryology Authority (HFEA). They sought leave from the High Court to bring a test case application for judicial review over the HFEA&amp;rsquo;s approval ... ]]></description>
		</item>
				<item>
			<title>European consultation on healthcare policy for rare diseases</title>
			<link>http://www.phgfoundation.org/news/month/12/2007/#story_3941</link>
			<pubDate>Thu, 13 Dec 2007 00:00:00 +0000</pubDate>
			<description><![CDATA[ EURORDIS, a non-governmental alliance of patient organisations and individuals active in the field of rare diseases (including more than 260 organisations in over 30 countries), which is supported by the European Commission, has released a consultation document on rare diseases, summarizing the nece ... ]]></description>
		</item>
				<item>
			<title>UK research funders warn patients of dangers of stem cell ‘cures’</title>
			<link>http://www.phgfoundation.org/news/month/08/2006/#story_2629</link>
			<pubDate>Tue, 29 Aug 2006 00:00:00 +0100</pubDate>
			<description><![CDATA[ The main funders of stem cell research in the UK have warned of the dangers of the “extravagant claims” made for stem cell treatments that are currently only available abroad. In a letter to The Times newspaper, groups representing fourteen research funders and medical charities such as the Medical  ... ]]></description>
		</item>
				<item>
			<title>Genetic birth defects a serious global problem</title>
			<link>http://www.phgfoundation.org/news/month/02/2006/#story_2284</link>
			<pubDate>Wed, 08 Feb 2006 00:00:00 +0000</pubDate>
			<description><![CDATA[ A global survey of serious genetic conditions has reported that almost eight million children worldwide are born with a serious genetic defect each year; many of these will die in early childhood and of those who survive, many more will be mentally and physically disabled.  The March of Dimes Global ... ]]></description>
		</item>
			</channel>
</rss>
