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		<title>Articles from the PHG Foundation Newsletter</title>
		<link>http://www.phgfoundation.org/newsletter</link>
		<description>Articles from the PHG Foundation Newsletter</description>
		<copyright>PHG Foundation</copyright>
		<list_type>news</list_type>
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				<item>
			<title>PHG Foundation responds to call for evidence on genomic medicine from House of Lords Committee</title>
			<link>http://www.phgfoundation.org/news/month/04/2008/#story_4071</link>
			<pubDate>Tue, 22 Apr 2008 00:00:00 +0100</pubDate>
			<description><![CDATA[ In 1995 the House of Commons Select Committee on Science and Technology published Human Genetics: the Science and its Consequences, a report which showed for the first that UK politicians were becoming aware of new developments in genetics and their potential impact on health care. Publication of th ... ]]></description>
		</item>
				<item>
			<title>OECD Consultation on Human Biobanks and Genetic Research Databases</title>
			<link>http://www.phgfoundation.org/news/month/04/2008/#story_4067</link>
			<pubDate>Sun, 20 Apr 2008 00:00:00 +0100</pubDate>
			<description><![CDATA[ The Organisation for Economic Co-operation and Development (OECD) has launched a public consultation on draft Guidelines for Human Biobanks and Genetic Research Databases (HBGRDs).The success of research involving the human genome and resulting applications is dependent on the sharing of knowledge c ... ]]></description>
		</item>
				<item>
			<title>European consultation on healthcare policy for rare diseases</title>
			<link>http://www.phgfoundation.org/news/month/12/2007/#story_3941</link>
			<pubDate>Thu, 13 Dec 2007 00:00:00 +0000</pubDate>
			<description><![CDATA[ EURORDIS, a non-governmental alliance of patient organisations and individuals active in the field of rare diseases (including more than 260 organisations in over 30 countries), which is supported by the European Commission, has released a consultation document on rare diseases, summarizing the nece ... ]]></description>
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				<item>
			<title>US report calls for increased oversight of genetic testing</title>
			<link>http://www.phgfoundation.org/news/month/11/2007/#story_3889</link>
			<pubDate>Thu, 08 Nov 2007 00:00:00 +0000</pubDate>
			<description><![CDATA[ The US Secretary&amp;rsquo;s Advisory Committee on Genetics, Health, and Society (SACGHS) has released a draft report for the Secretary of Health and Human Services (HHS) on the assessment and regulation of genetic testing, and is inviting public comments on the report.     The report is the result of a ... ]]></description>
		</item>
				<item>
			<title>HGC advocates legal ban on 'genetic discrimination'</title>
			<link>http://www.phgfoundation.org/news/month/09/2007/#story_3772</link>
			<pubDate>Fri, 28 Sep 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The UK&amp;rsquo;s Human Genetics Commission, which advises the Government on scientific advances in genetics, and in particular on their ethical, legal and social implications, has published its response to the Discrimination Law Review&amp;rsquo;s consultation on proposals for a Single Equality Bill for G ... ]]></description>
		</item>
				<item>
			<title>Health Secretary Alan Johnson calls for review of consent for organ donation</title>
			<link>http://www.phgfoundation.org/news/month/09/2007/#story_3745</link>
			<pubDate>Fri, 21 Sep 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The call by UK Health Secretary Alan Johnson for a review of the consent procedures required for organ donation (see BBC news, 20th September) is intriguing as the Human Tissue Authority (HTA), the organisation responsible for regulating organ donation, rejected any review of the law in this area at ... ]]></description>
		</item>
				<item>
			<title>HFEA approves in principle cytoplasmic hybrid research</title>
			<link>http://www.phgfoundation.org/news/month/09/2007/#story_3664</link>
			<pubDate>Tue, 11 Sep 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ On the 5th of September the Human Fertilisation and Embryology Authority (HFEA) approved in principle the use of animal eggs in the creation of cytoplasmic hybrid embryos for stem cell research.&amp;nbsp;Contrary to press headlines implying blanket support for true animal-human hybrids and chimeras, the ... ]]></description>
		</item>
				<item>
			<title>EU launches consultation document on 'bio-preparedness'</title>
			<link>http://www.phgfoundation.org/news/month/08/2007/#story_3591</link>
			<pubDate>Mon, 13 Aug 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The European Commission has launched a Green paper on bio-preparedness. Prompted by recent terrorist attacks in cities such as London, Madrid and New   York, the intention is to stimulate Europe-wide consultation on ways to reduce biological risks, and enhance response capabilities in the event of a ... ]]></description>
		</item>
				<item>
			<title>Fears for the future of UK science policy</title>
			<link>http://www.phgfoundation.org/news/month/08/2007/#story_3599</link>
			<pubDate>Mon, 13 Aug 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ As feared (see previous news story), Harriet Harman, the Leader of the UK House of Commons, has announced that the Science and Technology Select Committee (STC) will be dissolved. In its place, there will be a science focused permanent sub-committee of the new Committee for the Department for Innova ... ]]></description>
		</item>
				<item>
			<title>Parliamentary Joint Select Committee report on Human Tissue and Embryos (Draft) Bill</title>
			<link>http://www.phgfoundation.org/news/month/08/2007/#story_3567</link>
			<pubDate>Fri, 03 Aug 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The UK Parliamentary Joint Select Committee published its report on the Human Tissue and Embryos (Draft) Bill on 1 August 2007. The Committee has gathered an impressive array of evidence, engaged in novel methods of public engagement (see previous news), and has produced a thoughtful and balanced re ... ]]></description>
		</item>
				<item>
			<title>Royal Society supports research on human-animal hybrid embryos</title>
			<link>http://www.phgfoundation.org/news/month/08/2007/#story_3563</link>
			<pubDate>Thu, 02 Aug 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The Royal Society&amp;rsquo;s response to the Human Fertilisation and Embryology Authority&amp;rsquo;s (HFEA) consultation on the ethical and social implications of creating human-animal hybrids in research sets out strong support for a policy of allowing this research.    The Society believes that research ... ]]></description>
		</item>
				<item>
			<title>Royal society consultation on synthetic biology</title>
			<link>http://www.phgfoundation.org/news/month/07/2007/#story_3533</link>
			<pubDate>Mon, 23 Jul 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The Royal Society, an independent UK body dedicated to promoting excellence in science, is seeking views on the emerging discipline of synthetic biology, to inform their work on policy in this area.Synthetic biology refers to the artificial construction of novel biological systems or organisms; buil ... ]]></description>
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				<item>
			<title>EGAPP seeks members for stakeholder group</title>
			<link>http://www.phgfoundation.org/news/month/06/2007/#story_3467</link>
			<pubDate>Thu, 28 Jun 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The US National Office of Public Health Genomics is seeking additional members for a stakeholder group established to assist the development of the EGAPP (Evaluation of Genomic Applications in Practice and Prevention) project. The goal of EGAPP is &amp;ldquo;to establish and test a systematic, evidence- ... ]]></description>
		</item>
				<item>
			<title>Discrimination Law Review outlines proposals for a single Equality Bill for Great Britain</title>
			<link>http://www.phgfoundation.org/news/month/06/2007/#story_3432</link>
			<pubDate>Thu, 14 Jun 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The UK Government has launched a consultation on proposals for a single Equality Bill for Great Britain (England, Scotland and Wales). The proposals have been developed as a result of the work of the Discrimination Law Review, which was set up to explore the idea of creating a single, modernised fra ... ]]></description>
		</item>
				<item>
			<title>Human Tissue and Embryos Bill consultation</title>
			<link>http://www.phgfoundation.org/news/month/06/2007/#story_3431</link>
			<pubDate>Wed, 13 Jun 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The Parliamentary Joint Committee on the Draft Human Tissue and Embryos Bill has launched an econsultation forum which will run until 26 June. The terms of the consultation is limited to four areas which have already been scrutinised by Committee in oral evidence sessions. Firstly, the Committee has ... ]]></description>
		</item>
				<item>
			<title>Human Tissue and Embryos (Draft) Bill: Joint Parliamentary Committee publishes call for evidence</title>
			<link>http://www.phgfoundation.org/news/month/06/2007/#story_3404</link>
			<pubDate>Tue, 05 Jun 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ Ensuring that the law takes account of relevant scientific developments and changing public opinion is one aim of the draft Human Tissue and Embryos Bill, published on 17May 2007. The draft Bill will update parts of the Human Fertilisation and Embryology Act (1990) and the Human Tissue Act (2004) to ... ]]></description>
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				<item>
			<title>NICE report on only in research status for health interventions</title>
			<link>http://www.phgfoundation.org/news/month/05/2007/#story_3360</link>
			<pubDate>Thu, 24 May 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The UK National Institute for Health and Clinical Excellence (NICE) has released the report from its citizen&amp;rsquo;s council (a group of 30 members of the public selected as representative of the UK population). NICE provides national guidance on promoting good health and preventing and treating ill ... ]]></description>
		</item>
				<item>
			<title>US advisory group outlines policy issues raised by large population cohort studies</title>
			<link>http://www.phgfoundation.org/news/month/05/2007/#story_3306</link>
			<pubDate>Tue, 08 May 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ During the last few years the US National Institutes of Health has been considering the pros and cons of initiating a large, longitudinal population study to investigate the influence of genetic and environmental factors on common complex diseases. Similar initiatives are already underway in some ot ... ]]></description>
		</item>
				<item>
			<title>US advisory group seeks comments on pharmacogenomics report</title>
			<link>http://www.phgfoundation.org/news/month/05/2007/#story_3305</link>
			<pubDate>Fri, 04 May 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The US Secretary&amp;rsquo;s Advisory Committee on Genetics Health and Society (SACGHS), which advises the Secretary for Health and Human Services, is seeking comments on its draft report Realising the promise of pharmacogenomics: opportunities and challenges.     The aim of the report is &amp;ldquo;to prov ... ]]></description>
		</item>
				<item>
			<title>HFEA launches consultation on human-animal hybrid embryos</title>
			<link>http://www.phgfoundation.org/news/month/04/2007/#story_3293</link>
			<pubDate>Mon, 30 Apr 2007 00:00:00 +0100</pubDate>
			<description><![CDATA[ The Human Fertilisation and Embryology Authority (HFEA) has launched a public consultation on the ethical and social implications of creating human/animal embryos for research purposes.    This follows applications to the HFEA for licences to create such chimeras as a source of embryonic stem cells  ... ]]></description>
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