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		<title>Articles from the PHG Foundation Newsletter</title>
		<link>http://www.phgfoundation.org/newsletter</link>
		<description>Articles from the PHG Foundation Newsletter</description>
		<copyright>PHG Foundation</copyright>
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			<title>Translating genomics into health: meeting the challenges</title>
			<link>http://www.phgfoundation.org/news/month/04/2012/#story_11694</link>
			<pubDate>Wed, 18 Apr 2012 00:00:00 +0100</pubDate>
			<description><![CDATA[ Registration has opened for an innovative event organised by the PHG Foundation, with a unique focus on the opportunities for genomics to improve population health, and the challenges of achieving the necessary transfer into health systems.  &amp;nbsp;  Translating Genomics, to be held in the city of Ca ... ]]></description>
		</item>
				<item>
			<title>UK consultation on first national plan for rare diseases</title>
			<link>http://www.phgfoundation.org/news/month/03/2012/#story_11383</link>
			<pubDate>Mon, 05 Mar 2012 00:00:00 +0000</pubDate>
			<description><![CDATA[ The UK Department of Health has launched a new consultation on proposed plans for the first national strategy for rare diseases.  &amp;nbsp;  A rare disease is one that affects fewer than five people per 10,000; although they are individually rare, together they affect over 5% of the UK population (3.5  ... ]]></description>
		</item>
				<item>
			<title>Holistic approach to clinical cancer genomics in Norway</title>
			<link>http://www.phgfoundation.org/news/month/02/2012/#story_11197</link>
			<pubDate>Tue, 07 Feb 2012 00:00:00 +0000</pubDate>
			<description><![CDATA[ Norway has taken the first steps towards creating a national cancer genomic diagnostics service.  &amp;nbsp;  The first clinical applications of next-generation sequencing (NGS) technologies have been widely reported in the medical literature, and many hospitals around the world are trialing different f ... ]]></description>
		</item>
				<item>
			<title>Vision for future of genomics in UK health system</title>
			<link>http://www.phgfoundation.org/news/month/01/2012/#story_11079</link>
			<pubDate>Wed, 25 Jan 2012 00:00:00 +0000</pubDate>
			<description><![CDATA[ A new report from the government advisory body the Human Genomics Strategy Group (HGSG), Building on our inheritance, sets out a new strategic vision for how the UK can benefit from the adoption of genomic technologies in mainstream health services (see previous news).&amp;nbsp;    Genomics are said to  ... ]]></description>
		</item>
				<item>
			<title>Multi-purpose genetics data for science and health</title>
			<link>http://www.phgfoundation.org/news/month/01/2012/#story_10878</link>
			<pubDate>Tue, 03 Jan 2012 00:00:00 +0000</pubDate>
			<description><![CDATA[ The report from an expert workshop held last summer outlines frameworks of data standards that would support the use of genetic data &amp;lsquo;by both specialists and clinical geneticists&amp;rsquo;, and of data exchange applications for genomic medicine. Recommended next steps include securing funding to  ... ]]></description>
		</item>
				<item>
			<title>US recognises clinical importance of genome sequencing</title>
			<link>http://www.phgfoundation.org/news/month/12/2011/#story_10738</link>
			<pubDate>Thu, 08 Dec 2011 00:00:00 +0000</pubDate>
			<description><![CDATA[ The National Human Genome Research Institute (NHGRI) in the US has announced the $416 million funding to boost the uptake of genome sequencing into mainstream medical practice.  &amp;nbsp;  The new funding, part of the Large-Scale Genome Sequencing Program, is intended to focus on medical applications;  ... ]]></description>
		</item>
				<item>
			<title>Embedding genomics in public health and healthcare</title>
			<link>http://www.phgfoundation.org/news/month/12/2011/#story_10729</link>
			<pubDate>Wed, 07 Dec 2011 00:00:00 +0000</pubDate>
			<description><![CDATA[ The Office of Public Health Genomics (OPHG) of the US Centers for Disease Control and Prevention (CDC) has released a new report outlining priorities for public health genomics over the next five years to 2017.  &amp;nbsp;  These recommendations were developed from stakeholder consultation and an expert ... ]]></description>
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				<item>
			<title>Early roadmap for clinical cancer sequencing</title>
			<link>http://www.phgfoundation.org/news/month/12/2011/#story_10673</link>
			<pubDate>Fri, 02 Dec 2011 00:00:00 +0000</pubDate>
			<description><![CDATA[  ]]></description>
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				<item>
			<title>Medical data explosion requires urgent system changes</title>
			<link>http://www.phgfoundation.org/news/month/11/2011/#story_10492</link>
			<pubDate>Mon, 14 Nov 2011 00:00:00 +0000</pubDate>
			<description><![CDATA[ A new report -&amp;nbsp;Towards Precision Medicine&amp;nbsp;- published by the&amp;nbsp;National Research Council&amp;nbsp;earlier this month highlights the need for new systems to incorporate the ever growing health and disease-related information into a single resource that can help improve health outcomes.The re ... ]]></description>
		</item>
				<item>
			<title>New report: getting ready for genomics in health systems</title>
			<link>http://www.phgfoundation.org/news/month/10/2011/#story_10368</link>
			<pubDate>Tue, 25 Oct 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ The PHG Foundation&amp;rsquo;s latest report sets out a strategy for the UK National Health Services to make the most of new and emerging opportunities for better care thanks to whole genome sequencing (WGS) technologies.  &amp;nbsp;  Next steps in the sequence: the implications of whole genome sequencing f ... ]]></description>
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			<title>Clinical genome sequencing - a glimpse of the future?</title>
			<link>http://www.phgfoundation.org/news/month/10/2011/#story_10232</link>
			<pubDate>Mon, 10 Oct 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ A news piece in Nature outlines some of the recent developments in clinical use of whole genome sequencing. Past examples are cited ranging from the identification of mutations causing Miller Syndrome and a secondary genetic disorder in one family (see previous news) to the selection of an appropria ... ]]></description>
		</item>
				<item>
			<title>International approaches to rare diseases</title>
			<link>http://www.phgfoundation.org/news/month/09/2011/#story_9991</link>
			<pubDate>Mon, 19 Sep 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ A new report from the European Union Committee of Experts on Rare Diseases&amp;nbsp;(EUCERD), which sets out an overview of rare disease activities and policies across Europe, notes that the only EU member states with an established national strategy are France, Portugal, Greece, Bulgaria, Spain and the ... ]]></description>
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				<item>
			<title>UK health service 'unprepared' for genomics</title>
			<link>http://www.phgfoundation.org/news/month/08/2011/#story_9399</link>
			<pubDate>Wed, 03 Aug 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ Sir John Bell, the chairman of the government&amp;rsquo;s advisory Human Genomics Strategy Group (HGSG) has said that the UK is missing out on the opportunities for both patient and commercial benefits offered by modern genomics.  &amp;nbsp;  In an interview with Mark Henderson of the Times newspaper, Sir J ... ]]></description>
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			<title>European guidance on genetic testing for cardiac conditions</title>
			<link>http://www.phgfoundation.org/news/month/07/2011/#story_8988</link>
			<pubDate>Mon, 04 Jul 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ Current provision of genetic testing in Europe is said to be &amp;lsquo;patchy&amp;rsquo;. Both this observation and the recommendations for testing of patients and families, including post-mortem analysis, closely mirror the findings of the 2009 PHG Foundation Heart to Heart report, which led to the priori ... ]]></description>
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			<title>Born Healthy - new global community to tackle birth defects</title>
			<link>http://www.phgfoundation.org/news/month/06/2011/#story_8933</link>
			<pubDate>Thu, 30 Jun 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ A new initiative to improve global prevention and care for birth defects, Born Healthy, has been launched by the PHG Foundation.  Birth defects (congenital disorders) affect more than eight million babies each year, primarily in low and middle-income countries. As childhood deaths from infectious di ... ]]></description>
		</item>
				<item>
			<title>Effective drug treatment for cystic fibrosis</title>
			<link>http://www.phgfoundation.org/news/month/06/2011/#story_8919</link>
			<pubDate>Tue, 28 Jun 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ Cystic fibrosis (CF) sufferers have been given fresh hope with a new drug that specifically targets the so-called &amp;lsquo;Celtic gene&amp;rsquo; mutation (G551D) that is common in Ireland.   &amp;nbsp;  International trials led by Irish researchers have shown that the drug VX-770&amp;nbsp;(see previous news) imp ... ]]></description>
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			<title>WHO grand challenges in genomics for developing countries</title>
			<link>http://www.phgfoundation.org/news/month/06/2011/#story_8728</link>
			<pubDate>Wed, 08 Jun 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ The World Health Organization (WHO) has launched a new project to identify the leading priorities for genomics to address important public health issues in developing countries.  &amp;nbsp;  These top ten &amp;lsquo;Grand Challenges&amp;rsquo; will be the foremost policy and research priorities for ensuring tha ... ]]></description>
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				<item>
			<title>Report on evidence for genetic testing in medicine</title>
			<link>http://www.phgfoundation.org/news/month/05/2011/#story_8630</link>
			<pubDate>Mon, 23 May 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ It was noted that different stakeholders require different sorts of evidence, and that maintaining dialogue between them throughout development and evaluation of new genetic tests was important. The experts recommended that trials to generate evidence were increasingly required, but should be design ... ]]></description>
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				<item>
			<title>Genetic risk information can improve cancer screening</title>
			<link>http://www.phgfoundation.org/news/month/05/2011/#story_8522</link>
			<pubDate>Wed, 11 May 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[  ]]></description>
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				<item>
			<title>HGC releases report on preconception screening</title>
			<link>http://www.phgfoundation.org/news/month/04/2011/#story_8081</link>
			<pubDate>Thu, 07 Apr 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ Preconception genetic testing identifies carriers of genetic mutations responsible for a range of genetic conditions and has the advantage of identifying at-risk individuals at a point when they have the widest range of personal and reproductive choices. Such tests could either be offered to specifi ... ]]></description>
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