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		<title>Articles from the PHG Foundation Newsletter</title>
		<link>http://www.phgfoundation.org/newsletter</link>
		<description>Articles from the PHG Foundation Newsletter</description>
		<copyright>PHG Foundation</copyright>
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			<title>Portable legal consent framework for genomic research</title>
			<link>http://www.phgfoundation.org/news/month/04/2012/#story_11584</link>
			<pubDate>Thu, 05 Apr 2012 00:00:00 +0100</pubDate>
			<description><![CDATA[ &amp;nbsp;The PLC-CGR, piloted by Sage Bionetworks and collaborators, is the first tool within the Consent to Research project, which also aims to produce user engagement and data storage and access systems for common genomic research ]]></description>
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				<item>
			<title>Gene patenting and personalised medicine in the spotlight</title>
			<link>http://www.phgfoundation.org/news/month/04/2012/#story_11577</link>
			<pubDate>Wed, 04 Apr 2012 00:00:00 +0100</pubDate>
			<description><![CDATA[ The US Supreme Court has ordered a review of the most recent decision in favour of Myriad Genetics&amp;rsquo; BRCA1 and BRCA2 gene patents, in the light of a potentially contradictory ruling on a personalised medicine patent.  &amp;nbsp;  The latest decision in the long-running legal dispute, which began in ... ]]></description>
		</item>
				<item>
			<title>Proposed EU Data Protection reform and public health genomics</title>
			<link>http://www.phgfoundation.org/news/month/03/2012/#story_11462</link>
			<pubDate>Fri, 16 Mar 2012 00:00:00 +0000</pubDate>
			<description><![CDATA[ For some years, regulators and commentators have been aware that the regulatory framework governing the processing of personal data within Europe (through the EU Data Protection Directive 95/46/EC and the UK Data Protection Act (1998)) was in need of some reform to take account of technological adva ... ]]></description>
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			<title>Will new technologies normalise sex selective abortion?</title>
			<link>http://www.phgfoundation.org/news/month/02/2012/#story_11322</link>
			<pubDate>Mon, 27 Feb 2012 00:00:00 +0000</pubDate>
			<description><![CDATA[ The&amp;nbsp;Department of Health has launched an inquiry after the Telegraph newspaper reported evidence that doctors at abortion clinics in the UK were prepared to terminate pregnancies on the grounds of foetal sex.  Undercover reporters went with women to clinics across the country requesting termina ... ]]></description>
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			<title>New European rules to protect personal data</title>
			<link>http://www.phgfoundation.org/news/month/01/2012/#story_11094</link>
			<pubDate>Fri, 27 Jan 2012 00:00:00 +0000</pubDate>
			<description><![CDATA[ The European Commission has set out proposed new rules to strengthen personal privacy, with an increased responsibility for companies to protect online data.  &amp;nbsp;  The new rules include would the need for more formal consent to allow companies to hold data, and a &amp;lsquo;right to be forgotten&amp;rsqu ... ]]></description>
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				<item>
			<title>China and the US act on illegal stem cell treatments</title>
			<link>http://www.phgfoundation.org/news/month/01/2012/#story_10994</link>
			<pubDate>Mon, 16 Jan 2012 00:00:00 +0000</pubDate>
			<description><![CDATA[ The US Food and Drug Administration (FDA) has issued a warning against unregulated stem cell therapeutics.  &amp;nbsp;  In a statement, the regulator reminded the public to avoid any stem cell treatment that was not approved or under officially sanctioned investigation, noting that only one product (Hem ... ]]></description>
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			<title>Consultation on simplifying UK medicines legislation</title>
			<link>http://www.phgfoundation.org/news/month/01/2012/#story_10888</link>
			<pubDate>Wed, 04 Jan 2012 00:00:00 +0000</pubDate>
			<description><![CDATA[ This review is part of a laudable process to simplify regulation and make it easier for companies and other organisations to understand and comply with legal requirements in this area. It comes at a time when smaller pharmaceutical and biotechnology companies are reportedly increasingly outsourcing  ... ]]></description>
		</item>
				<item>
			<title>Patenting personalised medicine</title>
			<link>http://www.phgfoundation.org/news/month/12/2011/#story_10862</link>
			<pubDate>Fri, 23 Dec 2011 00:00:00 +0000</pubDate>
			<description><![CDATA[ The US Supreme Court has this month been considering whether it is legal for a company to hold a patent covering a biomarker test to determine the most appropriate levels of drug to use for treatment.  &amp;nbsp;  Prometheus Laboratories&amp;rsquo; patent covers a method to determine the most effective dose ... ]]></description>
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				<item>
			<title>Medical data explosion requires urgent system changes</title>
			<link>http://www.phgfoundation.org/news/month/11/2011/#story_10492</link>
			<pubDate>Mon, 14 Nov 2011 00:00:00 +0000</pubDate>
			<description><![CDATA[ A new report -&amp;nbsp;Towards Precision Medicine&amp;nbsp;- published by the&amp;nbsp;National Research Council&amp;nbsp;earlier this month highlights the need for new systems to incorporate the ever growing health and disease-related information into a single resource that can help improve health outcomes.The re ... ]]></description>
		</item>
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			<title>Patenting human embryonic stem cell products ruled illegal</title>
			<link>http://www.phgfoundation.org/news/month/10/2011/#story_10316</link>
			<pubDate>Wed, 19 Oct 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ The European Court of Justice has ruled that stem cells derived from human embryos are not patentable.  &amp;nbsp;  The decision upholds an earlier ruling to the same effect (see previous news) on the basis that patenting any cells or cell lines derived from the destruction of human embryos would be eth ... ]]></description>
		</item>
				<item>
			<title>Myriad retains BRCA gene patents in latest legal ruling</title>
			<link>http://www.phgfoundation.org/news/month/08/2011/#story_9422</link>
			<pubDate>Fri, 05 Aug 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ The US Federal Court of Appeals has ruled that the company Myriad Genetics is, after all, entitled to US patents held for the BRCA1&amp;nbsp;and&amp;nbsp;BRCA2&amp;nbsp;genes (see previous news), mutations in which are associated with hereditary breast-ovarian cancer syndrome.  &amp;nbsp;  This epic legal saga has  ... ]]></description>
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				<item>
			<title>Federal funding of human embryonic stem cell research legal</title>
			<link>http://www.phgfoundation.org/news/month/08/2011/#story_9334</link>
			<pubDate>Mon, 01 Aug 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ The legal challenge to US government funding for human embryonic stem (HES) cell research has been rejected by a judge.  &amp;nbsp;  Adult stem cell researchers claimed that such funding diverted National Institutes of Health (NIH) resources away from adult stem cell research and created an incentive fo ... ]]></description>
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			<title>DNA paternity test names revealed online</title>
			<link>http://www.phgfoundation.org/news/month/07/2011/#story_9250</link>
			<pubDate>Mon, 25 Jul 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ Early indications are that the breach was a result of poor controls over privacy and were not due to hacking. The leak could lead to legal action against the SA Government, or for individual compensation claims.&amp;nbsp; ]]></description>
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			<title>Genetic testing of embryos to become legal in Germany</title>
			<link>http://www.phgfoundation.org/news/month/07/2011/#story_9237</link>
			<pubDate>Mon, 25 Jul 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ The German government has voted for the most liberal of the three options under consideration (see previous news), despite widespread concern that it is an affront to the dignity of human embryos and could reduce social acceptance of disability. However, the chosen option is hardly reckless; the eth ... ]]></description>
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			<title>Update on US embryonic stem cell legal disputes</title>
			<link>http://www.phgfoundation.org/news/month/07/2011/#story_8998</link>
			<pubDate>Tue, 05 Jul 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ A US politician has reintroduced a bill to codify President Barack Obama&amp;rsquo;s 2009 policy to ease restrictions on federally funded research using human embryonic stem (HES) cells (see previous news). The bill, which in previous forms has passed Congress but was vetoed by the former President Geor ... ]]></description>
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			<title>French conservatives fight back against embryo research</title>
			<link>http://www.phgfoundation.org/news/month/05/2011/#story_8659</link>
			<pubDate>Sat, 28 May 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ Many researchers are keen to press ahead with human embryonic stem-cell research, and will be frustrated by this turn of events. However, as the vote clearly demonstrated, many people in France have profound ethical concerns about the use of human embryos and cell lines, even for medical research, f ... ]]></description>
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				<item>
			<title>Retention of cleared suspects' DNA by police ruled unlawful</title>
			<link>http://www.phgfoundation.org/news/month/05/2011/#story_8620</link>
			<pubDate>Tue, 24 May 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ The UK Supreme Court has ruled in support of an earlier European legal ruling that the records of up to one million individuals should be expunged from the National DNA Database.  The largest forensic DNA database in the world (see previous news) has for some years caused controversy over a number o ... ]]></description>
		</item>
				<item>
			<title>Protest at proposed halt to embryonic stem cell patenting</title>
			<link>http://www.phgfoundation.org/news/month/05/2011/#story_8388</link>
			<pubDate>Wed, 04 May 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ A group of scientists have written to Nature expressing their fears that proposals to ban patent protection for embryonic stem cell lines in Europe will harm medical research and progress.  &amp;nbsp;  The letter follows a statement from the Advocate General of the Court of Justice of the European Commu ... ]]></description>
		</item>
				<item>
			<title>US funding ban on human embryonic stem cell research lifted</title>
			<link>http://www.phgfoundation.org/news/month/05/2011/#story_8379</link>
			<pubDate>Wed, 04 May 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ After temporarily blocking an injunction preventing&amp;nbsp;federally funded human embryonic stem (HES) cell research in the US (see previous news), the Court of Appeals for Washington, D.C has now ruled that such research is legal and can continue.  &amp;nbsp;  Two of the three panel judges concluded that ... ]]></description>
		</item>
				<item>
			<title>Germany debates preimplantation genetic diagnosis</title>
			<link>http://www.phgfoundation.org/news/month/04/2011/#story_8326</link>
			<pubDate>Fri, 29 Apr 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ Germany is considering alternative proposals for a new law on the use of preimplantation genetic diagnosis (PGD).    Three proposed bills were introduced to the Bundestag this month; one would create a legal ban on all use of the technique. The second bill would permit PGD where there is a risk of s ... ]]></description>
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