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		<title>Articles from the PHG Foundation Newsletter</title>
		<link>http://www.phgfoundation.org/newsletter</link>
		<description>Articles from the PHG Foundation Newsletter</description>
		<copyright>PHG Foundation</copyright>
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			<title>Gene expression databases linked to personal genomic data</title>
			<link>http://www.phgfoundation.org/news/month/04/2012/#story_11687</link>
			<pubDate>Tue, 17 Apr 2012 00:00:00 +0100</pubDate>
			<description><![CDATA[ A new paper in Nature reports a mathematical method to link an individual&amp;rsquo;s DNA sample with the correct anonymised data in public research databases.  &amp;nbsp;  However, this has not aroused responses such as those to the a similar announcement in 2008, which prompted major bodies including the  ... ]]></description>
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				<item>
			<title>US issues professional guidance on genomic testing</title>
			<link>http://www.phgfoundation.org/news/month/04/2012/#story_11646</link>
			<pubDate>Wed, 11 Apr 2012 00:00:00 +0100</pubDate>
			<description><![CDATA[ The American College of Medical Genetics and Genomics (ACMG) has released a new Policy Statement on Genomic Sequencing.  Points to Consider in the Clinical Application of Genomic Sequencing sets out recommended guidelines for doctors highlighting situations where testing is likely to be most useful  ... ]]></description>
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				<item>
			<title>Portable legal consent framework for genomic research</title>
			<link>http://www.phgfoundation.org/news/month/04/2012/#story_11584</link>
			<pubDate>Thu, 05 Apr 2012 00:00:00 +0100</pubDate>
			<description><![CDATA[ &amp;nbsp;The PLC-CGR, piloted by Sage Bionetworks and collaborators, is the first tool within the Consent to Research project, which also aims to produce user engagement and data storage and access systems for common genomic research ]]></description>
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				<item>
			<title>Biobanks should inform participants of incidental findings</title>
			<link>http://www.phgfoundation.org/news/month/03/2012/#story_11513</link>
			<pubDate>Mon, 26 Mar 2012 00:00:00 +0100</pubDate>
			<description><![CDATA[ A new consensus statement from a National Institutes of Health (NIH) funded US working group has agreed that biobanks &amp;lsquo;shoulder significant responsibility&amp;rsquo; for the feedback of incidental findings (IFs) of potential medical importance.  &amp;nbsp;  Last year&amp;rsquo;s PHG Foundation report on t ... ]]></description>
		</item>
				<item>
			<title>Proposed EU Data Protection reform and public health genomics</title>
			<link>http://www.phgfoundation.org/news/month/03/2012/#story_11462</link>
			<pubDate>Fri, 16 Mar 2012 00:00:00 +0000</pubDate>
			<description><![CDATA[ For some years, regulators and commentators have been aware that the regulatory framework governing the processing of personal data within Europe (through the EU Data Protection Directive 95/46/EC and the UK Data Protection Act (1998)) was in need of some reform to take account of technological adva ... ]]></description>
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				<item>
			<title>US Bioethics Commission examines genomic data ethics</title>
			<link>http://www.phgfoundation.org/news/month/02/2012/#story_11204</link>
			<pubDate>Wed, 08 Feb 2012 00:00:00 +0000</pubDate>
			<description><![CDATA[ The US Presidential Commission for the Study of Bioethical Issues is examining ethical issues raised by whole genome sequencing, mores specifically on the proper use of genomic research data from clinical trials, with a particular focus on privacy issues.  &amp;nbsp;  The move from purely scientific res ... ]]></description>
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				<item>
			<title>New public survey on ethics and genomic information</title>
			<link>http://www.phgfoundation.org/news/month/01/2012/#story_11132</link>
			<pubDate>Tue, 31 Jan 2012 00:00:00 +0000</pubDate>
			<description><![CDATA[ The Wellcome Trust Sanger Institute has launched an innovative new online survey to gather views on genomic information and how it should be shared.  &amp;nbsp;  Genetic research has traditionally ensured that samples are anonymised, and individual research findings are not shared with participants. How ... ]]></description>
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				<item>
			<title>New European rules to protect personal data</title>
			<link>http://www.phgfoundation.org/news/month/01/2012/#story_11094</link>
			<pubDate>Fri, 27 Jan 2012 00:00:00 +0000</pubDate>
			<description><![CDATA[ The European Commission has set out proposed new rules to strengthen personal privacy, with an increased responsibility for companies to protect online data.  &amp;nbsp;  The new rules include would the need for more formal consent to allow companies to hold data, and a &amp;lsquo;right to be forgotten&amp;rsqu ... ]]></description>
		</item>
				<item>
			<title>Medical data explosion requires urgent system changes</title>
			<link>http://www.phgfoundation.org/news/month/11/2011/#story_10492</link>
			<pubDate>Mon, 14 Nov 2011 00:00:00 +0000</pubDate>
			<description><![CDATA[ A new report -&amp;nbsp;Towards Precision Medicine&amp;nbsp;- published by the&amp;nbsp;National Research Council&amp;nbsp;earlier this month highlights the need for new systems to incorporate the ever growing health and disease-related information into a single resource that can help improve health outcomes.The re ... ]]></description>
		</item>
				<item>
			<title>New report: getting ready for genomics in health systems</title>
			<link>http://www.phgfoundation.org/news/month/10/2011/#story_10368</link>
			<pubDate>Tue, 25 Oct 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ The PHG Foundation&amp;rsquo;s latest report sets out a strategy for the UK National Health Services to make the most of new and emerging opportunities for better care thanks to whole genome sequencing (WGS) technologies.  &amp;nbsp;  Next steps in the sequence: the implications of whole genome sequencing f ... ]]></description>
		</item>
				<item>
			<title>World first as genome sequencing offered to entire Faroe islands</title>
			<link>http://www.phgfoundation.org/news/month/09/2011/#story_10106</link>
			<pubDate>Fri, 30 Sep 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ The Faroe Islands, a self-governing group of islands within the Kingdom of Denmark, are to become the world&amp;rsquo;s first nation offering full genome sequencing to every citizen.  &amp;nbsp;  All 50,000 inhabitants will have the opportunity to participate in the new FarGen project, which will link genom ... ]]></description>
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				<item>
			<title>Genetics advances prompt update on consent and disclosure</title>
			<link>http://www.phgfoundation.org/news/month/09/2011/#story_9818</link>
			<pubDate>Mon, 05 Sep 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ In the light of rapid developments in the clinical applications of genetics, updated guidelines on the ethical and legal issues facing healthcare professionals in this complex area have been published.  &amp;nbsp;  The nature of genetic information means that test results often have potential implicatio ... ]]></description>
		</item>
				<item>
			<title>'U-turn' on DNA database deletion</title>
			<link>http://www.phgfoundation.org/news/month/07/2011/#story_9312</link>
			<pubDate>Thu, 28 Jul 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ Although DNA is unique to a specific person (with the exception of identical twins), some campaigners fear that human error could result in contamination of samples, errors in data handling and misinterpretation of profiles, leading to potential miscarriages of justice. However, these concerns would ... ]]></description>
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				<item>
			<title>DNA paternity test names revealed online</title>
			<link>http://www.phgfoundation.org/news/month/07/2011/#story_9250</link>
			<pubDate>Mon, 25 Jul 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[ Early indications are that the breach was a result of poor controls over privacy and were not due to hacking. The leak could lead to legal action against the SA Government, or for individual compensation claims.&amp;nbsp; ]]></description>
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				<item>
			<title>Should babies be screened for untreatable disorders?</title>
			<link>http://www.phgfoundation.org/news/month/06/2011/#story_8734</link>
			<pubDate>Thu, 09 Jun 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[  ]]></description>
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			<title>Interest in genetic testing of children for common disease risk</title>
			<link>http://www.phgfoundation.org/news/month/04/2011/#story_8165</link>
			<pubDate>Tue, 19 Apr 2011 00:00:00 +0100</pubDate>
			<description><![CDATA[  ]]></description>
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				<item>
			<title>Rights to personal genome testing</title>
			<link>http://www.phgfoundation.org/news/month/03/2011/#story_7900</link>
			<pubDate>Tue, 15 Mar 2011 00:00:00 +0000</pubDate>
			<description><![CDATA[ There have been strongly negative reactions to the news that an advisory panel to the FDA recommended obligatory clinical supervision of all results from genetic testing (see previous news).   &amp;nbsp;  The Genomes Unzipped response sets out a range of objections to the proposed moves towards heavy re ... ]]></description>
		</item>
				<item>
			<title>Calls for strict regulation of direct-to-consumer genetic testing</title>
			<link>http://www.phgfoundation.org/news/month/03/2011/#story_7849</link>
			<pubDate>Sun, 06 Mar 2011 00:00:00 +0000</pubDate>
			<description><![CDATA[ The American Medical Association (AMA) has called for all forms of genetic testing to be subject to supervision by a qualified health care professional.  In a letter to the Molecular and Clinical Genetics panel of the Food and Drug Administration (FDA), which is due to hold hearings on direct-to-con ... ]]></description>
		</item>
				<item>
			<title>Need to know may drive predictive disease testing</title>
			<link>http://www.phgfoundation.org/news/month/01/2011/#story_7327</link>
			<pubDate>Fri, 21 Jan 2011 00:00:00 +0000</pubDate>
			<description><![CDATA[ The survey suggested that in theory people were surprisingly willing to not only undergo but also pay for predictive disease testing for serious adult-onset conditions. One possible flaw is that most people are aware that for some of the diseases in question there are preventative and treatment opti ... ]]></description>
		</item>
				<item>
			<title>German genetic testing policy report strikes conservative note</title>
			<link>http://www.phgfoundation.org/news/month/11/2010/#story_6392</link>
			<pubDate>Mon, 15 Nov 2010 00:00:00 +0000</pubDate>
			<description><![CDATA[ Germany's national academy of sciences Leopoldina has published a new report on predictive genetic testing.   &amp;nbsp;  Predictive genetic diagnostics as an instrument of disease prevention is the output from a working group of experts from Leopoldina, the Berlin-Brandenburg Academy of Sciences and Hu ... ]]></description>
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