Regulation & ethics

The ethical, legal and social issues arising from new technologies are addressed throughout our work as well as in specific reports such as Realising Genomics. We also make expert recommendations to external consulting bodies and provide evidence to government.

 

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Black box medicine and transparency

With funding by the Wellcome Trust, we are examining what ethical and legal rules should, and could, apply to black box medicine.

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Reform of data protection legislation

We have been working with government departments and other NGO’s to highlight thelikely impact of GDPR on health care, biomedical innovation and medical research
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Regulating algorithms in healthcare

We are working with regulators, academics and developers to better understand the regulatory landscape that algorithms fit into in healthcare

consultation response

Consultation on the Centre for Data Ethics and Innovation

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The Data Protection Bill: contortionist-like drafting

Johan Ordish

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Identification and genomic data

Genomic data does not sit comfortably within the current legal and regulatory framework as a consequence of its nature and an overall lack of regulatory coherence. This report explains the complex debate and regulatory issues

research

Realising genomics

Topics

Fitting in the final piece of jigsaw

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