Control of patient information in the COVID-19 era

An expert panel discussed the COPI notice extensions and implications for biomedical research and regulation

Past event

How should confidential patient information be used in the future? Our report on the COPI notices explores this question and more. View it here.

Following the release of the PHG Foundation's in-depth report on the Control of Patient Information (COPI) notice extensions during the COVID-19 pandemic, on 6 December we discussed the key findings.

The new report, released on 30 November, considers how regulatory changes to the governance of patient information have impacted genomic and medical research, and whether these changes should be integrated into the regulatory framework longer-term.

An interactive panel of experts reacted to the findings, and add their own valuable insights. 

Watch the recorded discussion here:

Chaired by Dr Colin Mitchell, Acting Head of Humanities, PHG Foundation, the panel included:

anneke-lucassen-web
Anneke Lucassen

Director, Centre for Personalised Medicine
University of Oxford

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David Seymour

Executive Director
Health Data Research UK (HDR UK)

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Jacob Lant

Head of Policy, Public Affairs and Research and Insight
Healthwatch England

Alison Hall
Alison Hall

Senior Advisor (Humanities), PHG Foundation

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