Data integration and patient voice key to personalised medicine in the NHS

17 March 2016

UK Life Sciences Minister George Freeman MP highlighted on Tuesday the importance of data integration and the vital role of patient voice in order to realise the full potential of personalised medicine in the NHS.

Speaking to over 100 delegates at the launch of the new All-Party Parliamentary Group (APPG) on Personalised Medicine at Portcullis House, the Minister alluded to the country’s great strength in disease-specific research, but warned that the dream of personalised medicine “really relies on the oil of data and getting that to flow through the system.

The launch was led by APPG co-chair Lord Norman Warner and hosted by Maria Caulfield MP. In attendance were members of the new APPG including Baroness Masham, Lord Willis and Baroness Hollins. As well as hearing from distinguished medical experts, Professor Peter Johnson (Chief clinician, Cancer Research UK) and Professor Hugh Watkins (John Radcliffe Hospital / University of Oxford) on the benefits of personalised medicine for cancer and cardiac patients, delegates had the opportunity to see demonstrated some of the innovative technologies that could help delive r better, more tailored patient care in the future.

In a televised message to attendees, APPG chair Jo Churchill MP alluded to her personal experiences with cancer and hoped the group would provide “a much-needed forum for productive discussion and insightful debate on how personalised medicine offers us opportunities to provide a more efficient and effective NHS.”

Excitement on twitter was evident for the Group’s work ahead. Chi ef Scientific Officer Prof Sue Hill OBE said on twitter: “Glad to be part of a great launch as NHS England develops the future strategy for personalised medicine in the NHS”.

The members of the Group will next meet on 6 July for a closer look at the 100,000 Genomes Project.

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