Expansion of autism genetic research database

20 December 2011

The Autism Genetic Resource Exchange has joined forces with the US National Institutes of Health to create what may be the world’s largest multidisciplinary data resource on autism spectrum disorders (ASDs).
The AGRE, which is run by the US charity Autism Speaks (see previous news), has contributed genetic and phenotypic (medical, behavioural and developmental) data from more than 2000 families to the NIH’s National Database for Autism Research. This resource allows researchers to access data from a large number of different databases relating to ASDs with standardised data and analytical tools.

Dr Clara Lajonchere, Vice President of Clinical Programs at Autism Speaks said that the sharing of data would allow “research to proceed faster, more efficiently and cost effectively” and let researchers focus on the science rather than family recruitment and data collection. 

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