Heart to Heart: Inherited Cardiovascular Conditions Services is the final report from a needs assessment and review of current clinical services in the UK for patients with inherited cardiovascular conditions and their families. It was funded and produced by the PHG Foundation, in partnership with an expert Working Group that included cardiologists, geneticists, and representatives of patient organizations the Cardiomyopathy Association, CRY, the Marfan Association UK, SADS UK and the British Heart Foundation.
Following on from this report, the PHG Foundation was asked to produce commissioning guidelines for inherited cardiac conditions (ICC) services by the Department of Health, and the Specialised Commissioning Group (SCG) Directors subsequently agreed to designate ICC services as a priority for 2010/11.
The work of the PHG Foundation in this area was also recognised by the 2009 ERBI NHS Partnership Award, sponsored by the NHS East of England; for more information, see press release (PDF).
How to reference this report: Heart to Heart: Inherited Cardiovascular Conditions Services - A Needs Assessment and Service Review. Burton H, Alberg C, Stewart A. PHG Foundation (2009). ISBN 978-1-907198-01-4
For further information about the report, please contact Dr Philippa Brice.
For members of the media, quotations and contact details for authors and relevant experts are available; please contact the PHG Foundation press office on 07505092081