Consultation responses

 

2022

Digital transformation in the NHS
June 2022, House of Commons Health and Social Care Committee

Department of Health and Social Care – 10-Year Cancer Plan
April 2022, Department of Health and Social Care

The right to privacy: digital data
January 2022, House of Commons Science and Technology Select Committee

2021

Consultation response: MHRA Regulation
November 2021, Medicines and Healthcare products Regulatory Agency (MHRA)

Department for Digital, Culture, Media & Sport: Data Protection
November 2021, Department for Digital, Culture, Media and Sport

Nuffield Council of Bioethics consultation – Future of ageing
August 2021, Nuffield Council of Bioethics

MHRA patient and Public Involvement Strategy 2020-25
June 2021, Medicines and Healthcare products Regulatory Agency (MHRA)

2020

Consultation response: developing global standards for governance and oversight of human genome editing
August 2020, WHO Advisory Committee on Developing Global Standards for Governance and Oversight of Human Genome Editing

Public consultation about the Caldicott Principles and Caldicott Guardians
August 2020, National Data Guardian for Health and Social Care

Response to the EU Commission on a legislative framework for the governance of common European Data Spaces
July 2020, European Union Commission

Consultation response: Project Explain
January 2020, Information Commissioner’s Office

2019

Consultation response: Advancing our Health: Prevention in the 2020s
October 2019, Department of Health and Social Care

Commercial genomics inquiry
April 2019, House of Commons Science and Technology Select Committee

Review of national cancer screening programmes in England
April 2019, NHS England

National Data Guardian consultation on priorities
March 2019, National Data Guardian for Health and Social Care

Consultation response: review of the General Medical council consent guidance
January 2019, General Medical Council

Consultation response: stakeholders consultation on draft AI Ethics Guidelines
January 2019, EU High Level Expert Group on Artificial Intelligence

2018

Preparing the healthcare workforce to deliver the digital future
September 2018, Health Education England

Consultation response: Developing the long term plan for the NHS
September 2018, NHS England

Consultation on the Centre for Data Ethics and Innovation
September 2018, Department for Digital, Culture, Media and Sport

2017

Inquiry on using algorithms for decision-making
October 2017, House of Commons Science and Technology Committee

Inquiry on genomics and gene editing in the NHS
October 2017, House of Commons Science and Technology Committee

Inquiry on Artificial Intelligence: evidence
September 2017, House of Lords Select Committee on Artificial Intelligence

Inquiry on Life Sciences and the Industrial Strategy
September 2017, House of Lords Science and Technology Committee

Genome editing open call for evidence – updated response
June 2017, Nuffield Council on Bioethics

Profiling and automated decision-making under GDPR
May 2017, Information Commissioner’s Office

Inquiry into genomics and gene editing
January 2017, House of Commons Science and Technology Committee

Implementation of the rare diseases strategy
January 2017, APPG for Rare, Genetic and Undiagnosed Conditions

2016

National Data Guardian for health and care’s review of data security, consent and opt-outs
September 2016, Department of Health

The long-term sustainability of the NHS
September 2016, House of Lords Select Committee on the Long-Term Sustainability of the NHS

Call for views and evidence on non-invasive prenatal testing
July 2016, Nuffield Council on Bioethics

Nuffield Council on Bioethics – Genome Editing Open Call for Evidence
January 2016, Nuffield Council on Bioethics

Accelerated Access Review – interim report
January 2016, Accelerated Access Review

2015

The Big Data Dilemma Inquiry
September 2015, The Science and Technology Committee

Genetic laboratory service redesign
April 2015, NHS England

Nurse review of research councils
April 2015, Department for Business

Investing in specialised services
April 2015, NHS England

2014

Eurogentest guidelines
December 2014, Eurogentest

Legislation to encourage medical innovation in healthcare
April 2014, Department of Health

Expanded bloodspot screening
March 2014, National Screening Committee

The linking and use of biological and health data
January 2014, Nuffield Council of Bioethics

2013

Public Health England: Knowledge Strategy
November 2013, Public Health England

Comments on Incidental Findings from the Presidential Commission for the Study of Bioethical Issues
July 2013, Presidential Commission for the Study of Bioethical Issues

Tabled amendments to draft EU regulations on in vitro diagnostic medical devices (IVDDR)
June 2013, European Commission

2012

The benefits and harms of breast cancer screening
October 2012, Department of Health

2011

Innovation Review
August 2011, Department of Health

Emerging Biotechnologies
June 2011, Nuffield Council on Bioethics

Healthy Lives, Healthy People
March 2011, Department of Health

2010

Liberating the NHS consultation
October 2010, Department of Health

Call for evidence on the current data protection legislative framework
October 2010, Ministry of Justice

Revision of Directive 98/79 of the European Parliament and of the Council of 27 October 1998 on In Vitro Diagnostic Medical Devices
June 2010, European Commission

Request for Information on the NIH plan to develop the Genetics Testing Registry (GTR)
June 2010, National Institutes of Health (NIH)

2009

A Common Framework of Principles for direct-to-consumer genetic testing services
December 2009, Human Genetics Commission

Medical profiling and online medicine: The ethics of ‘personalised’ healthcare in a consumer age
July 2009, Nuffield Council on Bioethics

The framework for the registration of health and adult social care providers and on the draft regulations
May 2009, Department of Health

Regulations to implement the Human Fertilisation and Embryology Act 2008
May 2009, Department of Health

Consultation on Secondary Uses of Patient Information
May 2009, NHS Connecting for Health

2008

Revised Codes of Practice to the Human Tissue Act
November 2008, Human Tissue Authority

Cell-free fetal DNA for non-invasive prenatal diagnosis
October 2008, House of Lords Science and Technology Committee

Genomic Medicine
April 2008, House of Lords Science and Technology Committee

Consultation on Confidentiality Guidance
February 2008, General Medical Council

NHS Constitution
February 2008, NHS

The amendments to the draft charter for bereaved people
February 2008, Ministry of Justice

Consent in Research
February 2008, General Medical Council

Recast of the Medical Devices
February 2008, European Commission

Good Practice Guide in Paternity Testing Services
February 2008, Department of Health

Code of Practice for Genetic Tests
February 2008, Association of British Insurers

Data Sharing Review
February 2008, Ministry of Justice

2007

Review of the Declaration of Helsinki: Ethical principles for biomedical research involving human beings
November 2007, World Medical Association

Challenges and priorities for the next five years
October 2007, Medicine and Healthcare Products Regulatory Agency

Guidance on nominating a consultee for research involving adults who lack capacity to consent
September 2007, Department of Health