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Are data trusts trustworthy?BlogData is vital to health innovation but there remains a common feeling of mistrust in those who hold that data. Dr Elizabeth Redrup Hill considers why and what can be done to engender greater trust.
Managing incidental and pertinent findings from WGS in the 100,000 Genomes ProjectReportAn ethical framework for disclosing clinical and research findings to patients/research subjects.
COPI notices extended until March 2022BlogThe quiet extension by the UK Government of measures for lawful processing of confidential patient information for COVID-19 purposes is likely to have been welcomed by researchers.
How does the GDPR apply to genomic data?BlogColin Mitchell sets out why our work to clarify the impact of the GDPR on the use of genomic data is so necessary. The work is funded by the Information Commissioner's Office
EU propose General Data Protection RegulationCase studyThe 2020 Clinical genome analysis evidence review from PHG Foundation fed directly into strategic planning for the design and provision of clinical genetic services in Scotland
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