A qualified lawyer and nurse and longstanding member of an NHS Research Ethics Committee, Alison leads PHG Foundation’s regulation and ethics team. Recent work includes advocacy on data and device regulation that impacts innovations in healthcare. This includes appraising the impact of regulatory changes to EU data protection and medical devices regulation for clinical genetics services and medical research; working with stakeholders and statutory authorities to facilitate optimal data sharing policies in the NHS; and assessing how existing and future in vitro diagnostic devices regulation might impact on IVD device and software development.
Adrian Thorogood, Seydina B. Touré, Johan Ordish, Alison Hall, Bartha Knoppers.
Human Mutation. 2018; Vol. 39 Iss.11. pp1702-1712.
Gabrielle Samuel, Heidi Carmen Howard, Martina Cornel, Carla van El, Alison Hall, Francesca Forzano, Barbara Prainsack in Forensic Science International: Genetics 5 July 2018 (online)
H Alison, T Finnegan and C Susmita et al. J Community Genet 2018;9:195.
Murtagh M, B Mwenza, H Alison et al. Hum Genomics 2018;12:24
Hall A, Finnegan T, Chowdhury S, Dent T, Kroese M, Burton H. J Community Genet. 2018. https://doi.org/10.1007/s12687-018-0358-4. [Epub ahead of print]
Colin Mitchell, Corrette Ploem, Victoria Chico, Elizabeth Ormondroyd, Alison Hall, Susan Wallace, Michael Fay, Deirdre Goodwin, Jessica Bell, Simon Phillips, Jenny C. Taylor, Raoul Hennekam, Jane Kaye. Exploring the potential duty of care in clinical genomics under UK law. Medical Law International. 2017 Aug 14 [Epub ahead of print]
Henneman L, Borry P, Hall A. Responsible implementation of expanded carrier screening. Eur J Hum Genet. 2016 Jun; 24(6)w1-e12.
Chowdhury S, Hall A, Pashayan N, Pharoah P. What ethical and legal principles should guide the genotyping of children as part of a personalised screening programme for common cancer? Journal of Medical Ethics. 2013 Mar 1 [Epub ahead of print] PubMed PMID: 23454719
Gaff C, Hall A, Leonard S, Newson A. Known unknowns: building an ethics of uncertainty into genomic medicine BMC Medical Genomics (2016) 9:57 DOI 10.1186/s12920-016-0219-0
Bewshea C, Carrieri D, Hall A, Walker G. Ethical issues and best practice in clinically based genomic research: Exeter Stakeholders Meeting Report J Med Ethics doi:10.1136/medethics-2016-103530
de Wert G, Dondorp W, Hall A. Non-invasive prenatal testing for aneuploidy and beyond: challenges of responsible innovation in prenatal screening European Journal of Human Genetics. 2015 March 18
Bowman E, Goldring K, Gveric D, Hall A, Lacerda E, Nacul L, O'Donovan D, Pheby D. Considerations in establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome: a proposed protocol BMC Research Notes. 2014;(7):370
Alberg C, Hall A, Hallowell N, Zimmern R. Revealing the results of whole-genome sequencing and whole-exome sequencing in research and clinical investigations: some ethical issues Journal of Medical Ethics. Epub 2014 Jul 18
Nacul L,Stewart A, Alberg C, Chowdhury S, Burton H, Darlison MW, Grollman C, Hall A, Modell B, Moorthie S, Sagoo G, . A Toolkit to assess health needs for congenital disorders in low- and middle-income countries: an instrument for public health action Journal of Public Health. 2014 June;36(2):243-50. doi: 10.1093/pubmed/fdt048 : May 10, 2013 [Epub ahead of print]
Burton H, Chowdhury S, Hall A, Pashayan N, Pharoah P. What ethical and legal principles should guide the genotyping of children as part of a personalised screening programme for common cancer? Journal of Medical Ethics. 2014 Mar;40(3):163-7.
Burton H, Chowdhury S, Dent T, Hall A, Pashayan N, Pharoah P. Public health genomics and personalised prevention: lessons from the COGS project Journal of Internal Medicine. 2013 Nov;274(5):451-6
Burton H, Chowdhury S, Dent T, Feze I, Foulkes W, Hall A, Hamet P, Joly Y, Kirwan N, Knoppers B, Macdonald A, Pashayan N, Simard J, Van Hoyweghen I. Life insurance: genomic stratification and risk classification European Journal of Human Genetics. 2013 Oct 16. doi: 10.1038/ejhg.2013.228
Burton H, Chowdhury S, Dent T, Hall A, Pashayan N, Pharoah P. Implementing risk-stratified screening for common cancers: a review of potential ethical, legal and social issues Journal of Public Health (Oxf). 2013 Aug 28
Burton H, Chowdhury S, Dent T, Hall A, Pashayan N, Pharoah P. Public health implications from COGS and potential for risk stratification and screening Nature Genetics. 2013 Apr;45(4):349-51 doi: 10.1038/ng.2582. PubMed PMID: 23535723
Burton H, Chowdhury S, Dent T, Hall A, Hall P, Lyratzopoulos G, Pashayan N, Pharoah P. Incorporating genomics into breast and prostate cancer screening: assessing the implications Genetics in Medicine. 2013 Feb 14 doi: 10.1038/gim.2012.167. [Epub ahead of print] PubMed PMID: 23412607
Burton H, Hall A. Legal and ethical implications of inherited cardiac disease in clinical practice within the UK Journal of Medical Ethics. 2010 36: 762-766
Burke W, Hall A, Karmali M, Khoury M, Knoppers B, Meslin E, Stanley F, Wright C, Zimmern R. Extending the reach of public health genomics: What should be the agenda for public health in an era of genome-based and "personalized" medicine? Genetics in Medicine. Vol 15, Nov 2010
Hall A, Wright C, Zimmern R. Regulating direct-to-consumer genetic tests: What is all the fuss about? Genetics in Medicine. 2010 Oct 1 [Epub ahead of print]
Bostanci A, Hall A, Wright C. Non-invasive prenatal diagnosis using cell-free fetal DNA technology: applications and implications Public Health Genomics. 2010;13(4):246-55. Epub 2010 Apr 15
Alberg C, Burton H, Hall A, Inherited Cardiovascular Conditions Services , Sagoo G, Stewart A. Inherited cardiovascular conditions: the challenges of genomic medicine Heart 2010 Mar;96(6):474-6
Hall A, Liddell K. Beyond Bristol and Alder Hey: The Future Regulation of Human Tissue Medical Law Review. 2005;Summer:170-223